by Francesca Scognamiglio | Feb 1, 2022 | In Memoriam
Our sweet girl Denise was born in 1974 when not much was known about CdLS. Thank goodness for the formation of the CdLS Foundation which became a great source of information and support for families. She lived her entire 47 years with her parents and taught us much...
by Francesca Scognamiglio | Feb 1, 2022 | In Memoriam
Adam was born during the time when families were just beginning to find each other, first through the newsletter, and then through the Foundation. He was a mystery to his doctors, educators, therapists and family but everyone fell in love with him immediately! He was...
by Francesca Scognamiglio | Jan 25, 2022 | In Memoriam
Curtis was a joy to all who met and knew him. His infectious smile and sense of humor was contagious. He was a great listener and brought comfort in the form of a big hug, word or smile. He loved life. He loved to make jewelry, singing and working with his peers at...
by Francesca Scognamiglio | Feb 12, 2021 | In Memoriam
Our beautiful Angel got to see the face of God on February 5th 2020. We were so blessed to have her 38 years! She fought a long hard battle for three weeks but God called her home. She was definitely the light and strength of our family. She adored her brother Paul...
by Francesca Scognamiglio | Feb 12, 2021 | In Memoriam
Steven was a great teacher to his doctors, therapists and teachers. His soul is old and wise. He was the center of our universe, but we didn’t realize just how very important he was to all the people in his life, from caregivers to bus aide, until after he died....
by Francesca Scognamiglio | Feb 12, 2021 | In Memoriam
Our sweet Addilyn Joelle, who we called ‘Addi Jo’, was born at 34 weeks weighing a whopping 3lbs 5oz and measured 15inches. She had the most beautiful head of dark brown hair and the most beautiful crystal blue eyes that sometimes looked green. She looked just like a...
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