The CdLS Blog

As seen in Reaching Out By: Julia O’Connor, Ph.D., Clinical Advisory Board Member, CdLS Foundation and Clinical Psychology, Kennedy Krieger Institute  Marco Grados M.D., M.P.H., Clinical Advisory Board Member, CdLS Foundation and Child Psychiatry, Johns Hopkins...

Earlier this month, the Bynum family raised funds and awareness for Cornelia de Lange Syndrome (CdLS) through a biking, skating, and "anything with wheels" event in Licht Park, MI. The fundraiser, "Rolling for Paige," honored Paige Bynum. Paige was diagnosed with...

www.disabilityscoop.com by Shaun Heasley A new documentary highlighting the experiences of the millions of paid and family caregivers across the nation is set to premiere. The two-hour film “Caregiving” focuses on the personal experiences of six caregivers while...

Mark J. Griffin, PhD understood.org Q. My child has reading and math challenges, and she’s worked really hard this year to make progress in these areas. Is it important for her to keep working on these skills over the summer? Or is it better if she has a real break?...

A Global Genes Quick Guide is a resource for advocates focused on pressing topics causing challenges in their lives and communities.  Medical Gaslighting: The Issue Medical gaslighting occurs when a patient’s genuine concerns for their medical care are dismissed...

by Dahlia Bazzaz, The Seattle Times/TNS DisabilityScoop.com BELLEVUE, Wash. — Avery Lovern hovered over a table covered in royal blue construction paper, carefully writing the name of his favorite video game. The 18-year-old is still exploring what might come next...

parentingspecialneeds.mydigitalpublication.com The first time I was told my son was “too much” for camp, I was stunned. For families like mine, raising one of the 1 in 6 kids with a disability, summer often means closed doors instead of carefree fun. THE SUMMER CAMP...

How has being a dad to a child with CdLS shaped who you are today? Raekwon Graham - Being a dad to a child with CdLS shaped me who I am today in so many ways. Becoming a dad changes your life but becoming a dad to a child with CdLS reshapes my heart, my mindset, and...

parentingspecialneeds.mydigitalpublication.com Creating a sensory-friendly home can ease stress, reduce overwhelm, and promote calm for autistic children. This guide shares four core principles, with room-by-room suggestions, to help you make practical changes that...

parentingspecialneeds.mydigitalpublication.com When you can’t get away, a “road trip” through your house can turn any day into a beach day. Learn how with this fun activity. TURN YOUR HOME INTO A FUN ROAD TRIP TO THE BEACH My family and I love going on road trips,...