The CdLS Blog
Inclusive cafe for all abilities aims to ‘Inspire’ community
By Ashley Kus Communications Coordinator After a day of training at the new INspire Cafe in Wakefield, Massachusetts, Janis Mamayek's son Whitman was all smiles. "He was beaming ear to ear," Janis said. "The joy was just abundant." Whitman, who will turn 30 in May,...
Walmart Enhancing Accessibility For Shoppers With Disabilities
by Michelle Diament DisabilityScoop.com The nation’s largest retailer is piloting a new program aimed at enabling people with disabilities to shop more independently. Walmart is providing free access to visual interpreters at its stores and on its website. The...
Can certain diets improve behavioral issues?
By CdLS Foundation Clinical Advisory Board (CAB) *Can certain diets improve behavioral issues? My son's neurochiropractor suggests the use of diet (i.e. eliminate wheat and dairy) to assist in neurological development (including improvements in behavior). Most of his...
Types of behavior assessments
By Erica Patino Expert reviewed by Elizabeth Harstad, MD, MPH understood.org *Behavior assessments are different from tests that screen for learning differences. They don’t have right or wrong answers. Instead, they look at how kids interact with their world. These...
When is it time to get my child help for mental health issues?
By Child Mind Institute understood.org *When children have emotional or behavioral problems, the earlier they get treatment, the easier it is to help them. But as parents, you also want to avoid unnecessary treatment and costs in both time and money. There are times...
The Unseen Resolutions We Keep: Celebrating Life with Special Needs
Posted By Michele Gianetti parentingspecialneeds.org Happy New Year! And that means it’s resolution time, is it not? Go to any home shopping channel on the new year and you will see it for yourself. Treadmills, healthy home delivery food services, exercise mats…. the...
6 tips for helping kids understand siblings who learn and think differently
By Laura Tagliareni, PhD understood.org Many siblings have times when they don’t get along. They may argue, tease, and call each other names. It happens in families with or without a child with learning and thinking differences like dyslexia and ADHD. But when a child...
New Rule Expands Disability Rights In Air Travel
By Disability Scoop, Shaun Heasle Federal officials are finalizing a rule that they say will yield the largest expansion of rights for airline passengers with disabilities in a generation. Under the regulation published last month, the U.S. Department of...
Changes At Disney Bring Challenges, Frustration For Those With Disabilities
by Shauna Muckle, Tampa Bay Times/TNS disabilityscoop.com Mary Benhart’s family gushed about Disney World’s willingness to accommodate people with disabilities in an ad for the company last year. “You can actually relax as a special-needs family,” Benhart said,...
Meet Lindsey
By Lindsey's Family Our journey with Lindsey, who was diagnosed with Cornelia de Lange Syndrome (CdLS)NIPBL mutation, has been filled with challenges, triumphs, and invaluable lessons. From medical hurdles like feeding struggles, hearing loss, and seizures to...
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