The CdLS Blog

Pediatricians Get Updated Guidance On Diagnosing Developmental Disabilities
by Shaun Heasley DisabilityScoop.com The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability. Doctors should use genetic testing to assess children early,...

Understanding Divorce and the Child With Special Needs
Protected Tomorrows Sadly, one out of every two marriages in the United States now ends in divorce. The many details involved in planning for a child with special needs in a divorce often fall to the wayside, as a myriad of other considerations consume the attention...

5 smart summer routines for kids with ADHD
Tara Drinks understood.org The routines of the school year often fall by the wayside during the summer. In some ways, that’s a good thing. Kids (and parents) need a break from the pressures of the school year. But for kids with ADHD, ditching routines entirely can...

As Seen in Reaching Out: Communication Challenges & Mutual Reinforcement
Sourced from findresources.co.uk Communication Challenges Challenging behaviors may arise in individuals with CdLS, leading to ineffective communication. Frustrations often occur when the individual is misunderstood or struggles to convey their thoughts clearly....

How to Plan the Best Summer Schedule for Special Needs Kids
https://specialedresource.com/ Common questions educators receive from parents are: What is the best Summer schedule for kids? Should my child do school work over summer break? Will my special needs child fall more behind if he takes a break for the Summer? The...

PBS Documentary Explores Transition To Adulthood For Young People With Disabilities
DisabilityScoop.com by Shaun Heasley For individuals with disabilities, the road to becoming an independent adult can be especially challenging. A new film finds one man on the cusp of this transition seeking advice from notable disability activists. “The Ride Ahead”...

As Seen in Reaching Out: BEHAVIOR Psychology & Medications
As seen in Reaching Out By: Julia O’Connor, Ph.D., Clinical Advisory Board Member, CdLS Foundation and Clinical Psychology, Kennedy Krieger Institute Marco Grados M.D., M.P.H., Clinical Advisory Board Member, CdLS Foundation and Child Psychiatry, Johns Hopkins...

Family event “rolls” in awareness and funds for CdLS
Earlier this month, the Bynum family raised funds and awareness for Cornelia de Lange Syndrome (CdLS) through a biking, skating, and "anything with wheels" event in Licht Park, MI. The fundraiser, "Rolling for Paige," honored Paige Bynum. Paige was diagnosed with...

PBS Documentary Spotlights Caregiving
www.disabilityscoop.com by Shaun Heasley A new documentary highlighting the experiences of the millions of paid and family caregivers across the nation is set to premiere. The two-hour film “Caregiving” focuses on the personal experiences of six caregivers while...

Should my child work on school skills over the summer or take a break?
Mark J. Griffin, PhD understood.org Q. My child has reading and math challenges, and she’s worked really hard this year to make progress in these areas. Is it important for her to keep working on these skills over the summer? Or is it better if she has a real break?...
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