The CdLS Blog

How the Empowerment Team Dealt with COVID-19

How the Empowerment Team Dealt with COVID-19

As we know COVID-19 has changed the way we interact and socialize with others. Most of our high function adults with CdLS were struggling with managing changes to their daily routine such as not being able to; attend day programs, return back to work or go out into...

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Awareness Day Idea – Random Acts of Kindess

Awareness Day Idea – Random Acts of Kindess

A fun way to celebrate Awareness Day is to do a random act of kindness for someone in your community. Whether it is buying the coffee for the person behind you in the Dunkin Donuts drive through, or leaving your favorite book for someone to find. These actions can...

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Host a Virtual Trivia Night

Host a Virtual Trivia Night

Planning on hosting on a virtual trivia fundraiser for Awareness Day? Use this helpful guide to have a smooth and fun night with friends and family. 4-6 Weeks Before Event: Choose a date and time for the event. Contact Annette Scheidecker to set up a fundraising page....

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CdLS Awareness Day 2021

CdLS Awareness Day 2021

Since 1989, the CdLS Foundation has been celebrating CdLS Awareness Day in order to shed light on this often misdiagnosed, little-known genetic syndrome. The second Saturday of May is CdLS Awareness Day and there are many ways you can help individuals living with this...

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COVID-19 Vaccine and Individuals with CdLS

COVID-19 Vaccine and Individuals with CdLS

The Pfizer-BioNTech COVID-19 vaccine and the Moderna vaccine that have been approved for an Emergency Use Authorization (EUA) by the Food and Drug Administration (FDA), were about 95% effective at reducing the risk of COVID-19 infection. These are mRNA vaccines, not...

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Celebrating Norm

Celebrating Norm

Norm Winnerman, valued member of the CdLS Foundation will be receiving the Rare Impact Award from NORD. NORD will be honoring all exceptional awardees, virtually, on October 9, 2020 at 7:00 pm EST. The award honors his years of service as a pioneer, mentor and...

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