The CdLS Blog

by Shaun Heasley Disabilityscoop.com A documentary about the decades-long fight for disability rights culminating in the passage of the Americans with Disabilities Act is set to premiere. The film “Change, Not Charity: The Americans with Disabilities Act” follows the...

The Cornelia de Lange Syndrome Foundation (CdLS) will benefit from a Color Run fundraiser next month hosted by the Science Outreach Club at Eckerd College.  The Eckerd College Science Outreach Club recently established a Students for Rare chapter affiliated with the...

By CdLS Foundation Clinical Advisory Board (CAB) Do individuals with CdLS gain weight in a regular basis? It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own...

Parenting Special Needs parentingspecialneeds.org Reducing Anxiety Anxiety is one of the most common challenges faced by autistic youth. As parents, when we see our children afraid or anxious, we naturally try to make them feel better. This includes allowing our...

Parenting Special Needs parentingspecialneeds.org From a freshly bathed baby to a sticky handed toddler, and then to a sweaty middle school-er, we are there as our children grow and develop, But, it is the area of puberty (and the necessary proper hygiene that goes...

Parenting Special Needs Magazine No matter how well you plan, things that you never expected can still happen. Flexibility is crucial, as is staying on top of things. Discover why planning and going with the flow are necessary in your life. I have always been a...

By CdLS Foundation Clinical Advisory Board (CAB) Is frequent constipation related to CdLS? Yes, constipation is frequently seen in CdLS, in up to 40% of individuals. For routine constipation I think prune juice and other dietary manipulations are helpful. Also, I...

By Shaun Heasley  DisabilityScoop.com A new theme park is prioritizing the needs of children with disabilities as it opens its doors for the first time. The Peppa Pig Theme Park near Dallas opened over the weekend complete with a host of accessibility features. All...

By CdLS Foundation Clinical Advisory Board (CAB) Our seven-year-old son needs to have a cavity filled but is very uncooperative at the dentist’s office. Is there any anesthesia that would help him out? I don’t like putting him through such a traumatic thing and I hate...

On Saturday, January 25, 2025, Michelle Gentry, and her family hosted the final rodeo in a five-event “Bulls and Barrels” series to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. CdLS is a rare genetic spectrum disorder that causes a...