Adam was born during the time when families were just beginning to find each other, first through the newsletter, and then through the Foundation. He was a mystery to his doctors, educators, therapists and family but everyone fell in love with him immediately! He was cute, messy, tenacious, funny, stubborn, and quite the character! He started walking for the first time at age 15 years, 5 months!! We have always thought of him as a Pathfinder for CdLS kids who followed him. He made a huge impact on those who met him. Even all these years later, people are still telling their favorite Adam stories. He changed our lives for the better and we continue to miss him every day.

Share This