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Minute Man Arc client graduates from self-advocacy program

by Gabbie Nadeau | Dec 27, 2018 | Media Room, Uncategorized

The following is from a submission by Stephanie Parish, Minute Man Arc. Valerie Lessa, of Concord, graduated from an eight-week Self-Advocacy Leadership Series at Bridgewater State University on Sept. 5. [Courtesy Photo] On Sept. 5, Valerie Lessa, a Minute Man Arc...

How to Plan Finances to Raise a Special-Needs Child

by Gabbie Nadeau | Dec 27, 2018 | Uncategorized

By Paul SullivanThe New York Times (https://nyti.ms/2RanViN) Carole and Michael Maguire were careful to plan early for the financial needs of their daughter Ally, who is now 19 and attends the Riverview School on Cape Cod, Mass.Credit Credit Kieran Kesner for The New...

Mothers of Children with Rare Genetic Syndromes Experience Stress Similar to Moms of Autistic Kids, Study Finds

by Gabbie Nadeau | Dec 17, 2018 | Uncategorized

Mothers of Children with Rare Genetic Syndromes Experience Stress Similar to Moms of Autistic Kids, Study...

My Experience Attending the 2018 ASHA Convention

by Gabbie Nadeau | Dec 12, 2018 | Uncategorized

Michele Champion, M.Ed., Special Education, CdLS Foundation Professional Development Committee I recently had the opportunity to attend an ASHA (American Speech-Language-Hearing Association) Convention in Boston. ASHA is the national association for members and...

Parents host One Love, One Heart 5K to benefit rare disorder, daughter on Dec. 8

by Gabbie Nadeau | Dec 3, 2018 | Media Room

Jim and Jen Pomfret are preparing to mark the fourteenth year of the One Love, One Heart 5K Walk/Run on Saturday, Dec. 8, at 10 a.m. The event supports those who have a rare genetic disorder called Cornelia de Lange Syndrome (CdLS), including their daughter, Maya....

Recent Posts

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  • 2019 Awareness Day T-shirt Contest
  • Cornelia de Lange syndrome: What every otolaryngologist should know
  • ‘Expect problems,’ she told us. I had heard those words before, yet my brain couldn’t make sense of them. ‘What kind of problems?,’ I asked, my voice trembling.’

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