Recent Posts
- Parents host One Love, One Heart 5K to benefit rare disorder, daughter on Dec. 8
- Local Restaurant Raises Funds to Assist Woman Bringing Awareness to Rare Disease
- 9th Annual Brew & BBQ Benefiting the Cornelia de Lange Syndrome (CdLS) Foundation, Nonprofit Working with Individuals with Rare Disorder
- National Nonprofit Holds Conference, Encourages Families to Build Bridges, in Minneapolis MN
- Medical & Educational Leaders Gather at National Genetic Disorder Symposium
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