Get Involved

Whether donating their time, expertise or money, parents, relatives, friends and community members give generously to the Foundation.

Inspire others to take steps to learn about CdLS.

Raise Awareness

There are many different ways to raise awareness of CdLS in your community.

An estimated 20,000 men, women and children have CdLS but remain undiagnosed and/or without the support services the Foundation provides. In order to raise consciousness of CdLS among the public, the Foundation produces materials specific for awareness. These include bookmarks, flyers, brochures, a public service announcement, electronic presentations and more. The Foundation also provides materials specific to students and medical professionals.

Calendar of Events

From bake sales to marathons, fundraising events are an important and effective way to raise awareness of CdLS and to support the Foundation.

Throughout the year, several Foundation-sponsored fundraising events and programs are offered, including Team CdLS, Leaps of Love and Cornelia’s Garden.


Special Events

The Foundation offers a range of fundraising programs. Some require you to run 26.2 miles, while others ask you to simply lick a stamp.

Host a Fundraiser

Volunteers across the country hold their own fundraising events, generating approximately one-third of the Foundation’s annual budget. You can show your commitment to individuals with CdLS by hosting your own fundraiser. The Foundation is here to help you along the way.