Blake Lee Remmer-Crutcher

Blake Lee Remmer-Crutcher

Hi my name is Blake Lee Remmer-Crutcher. I was born with a heart defect on January 22, 2000, one day earlier than expected. We didn’t know what syndrome I had until I was about 3 years old & that syndrome was CdLS (Cornelia de Lange Syndrome). I was...
Adrian illyana Bajema

Adrian illyana Bajema

Adrian Illyana was only with us for 9 weeks but we got to spend most of that precious time with her in the comfort of our home. She was born full term breech at only 3 lbs 8 oz in May 2020, early in the pandemic. Despite insurmountable health challenges, she navigated...
Anya Janoski

Anya Janoski

Anya was a teacher to so many of us: family, friends, teachers! She was funny, sneaky, and very challenging. Anya was tube-fed until 2 1/2 yrs old, walked at 5 years (when she weighed 20 lbs!,) and even though her mom is a Speech Pathologist !, she never talked. Anya...
Jocelyne Sharrard

Jocelyne Sharrard

Jocelyne passed just short of her 43 birthday. Born in 1978 at 1 lb. 3 oz she had been a fighter her entire life. Despite her disabilities she taught our family, and all who knew her, more about unconditional love and compassion than you could imagine. Give her a...