The Cornelia de Lange Syndrome (CdLS) Foundation provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions.
If CdLS is Part of Your Life, We’re Here to Help
CdLS occurs in approximately 1 in 10,000 live births and the CdLS Foundation is honored to currently serve over 2,800 individuals with this rare genetic syndrome.
We also aim to reach the thousands more who live without a diagnosis and/or are unaware of services available to them. If you or someone you know would benefit from our many support services, please let us know!
Ask The Experts
The Foundation can put you in touch with a caring group of 50 medical and educational specialists with experience treating individuals with CdLS. These experts are here to help parents, caregivers, healthcare providers and teachers enhance an individual’s health, development and education.
Small Grants Program
The CdLS Foundation has a vision and researchers have the determination to find treatments to help individuals with CdLS overcome many of the challenges they face. Funding is available to young investigators defined as students, fellows, or faculty within the first 5 years of their appointment at academic and research institutions in the United States. Letters of intent are due February 29, 2019.
There are a variety of ways you can be part of the community – whether it is through a fundraiser or volunteering – the options are endless.
The Foundation staff is the most caring and dedicated group of people who are always ready to listen or point us in the right direction when we desperately need help.”
Mother of Stephen