The Cornelia de Lange Syndrome (CdLS) Foundation provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions.
If CdLS is Part of Your Life, We’re Here to Help
CdLS occurs in approximately 1 in 10,000 live births and the CdLS Foundation is honored to currently serve over 2,800 individuals with this rare genetic syndrome.
We also aim to reach the thousands more who live without a diagnosis and/or are unaware of services available to them. If you or someone you know would benefit from our many support services, please let us know!
2020 National Family Conference
National Family Conference is a life-enhancing, 4-day event that bonds and strengthens the entire CdLS community. Held every other year, Conference brings together the broad spectrum of our diverse and dynamic community, including individuals with CdLS, their families, caregivers, medical and therapeutic professionals, volunteers and researchers.
Share a memory of your loved one
There are a variety of ways you can be part of the community – whether it is through a fundraiser or volunteering – the options are endless.
The Foundation staff is the most caring and dedicated group of people who are always ready to listen or point us in the right direction when we desperately need help.”
Mother of Stephen