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Cornelia de Lange Syndrome Foundation Supports Rare Disease Day® and Joins Global Movement to Raise Awareness for Rare Diseases

by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized

The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...

Five Outstanding Professionals from Across the US Elected to Prestigious CdLS Foundation Board of Directors

by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized

The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
The CdLS Foundation Longtime Volunteer Receives Rare Impact Award from NORD!

The CdLS Foundation Longtime Volunteer Receives Rare Impact Award from NORD!

by Gabbie Nadeau | Feb 24, 2020 | Media Room, Uncategorized

Norm Winnerman, retired Danbury High School teacher and Athletic Director, and valued member of the Cornelia de Lange Syndrome (CdLS) Foundation will be receiving the Rare Impact Award. The National Organization for Rare Disorders (NORD) will be honoring all...
Avon nonprofit moves to larger office space in town

Avon nonprofit moves to larger office space in town

by Gabbie Nadeau | Sep 6, 2019 | Media Room, Uncategorized

By Sean Teehan The Avon-based Cornelia de Lange Syndrome (CdLS) Foundation has moved its headquarters to a larger office in town to facilitate growth, it said. The CdLS Foundation has 10 employees and provides services — including running support groups and four...

An Open Letter to the New England Patriots

by Gabbie Nadeau | Sep 4, 2019 | Media Room, Uncategorized

Dear Ms. Spigarolo, Mr. Kraft and the New England Patriots Team: I want to extend a sincere thank you, on behalf of all families with children with special needs, for providing access to enjoy your training camp. This year was even more important and special for our...

Minute Man Arc client graduates from self-advocacy program

by Gabbie Nadeau | Dec 27, 2018 | Media Room, Uncategorized

The following is from a submission by Stephanie Parish, Minute Man Arc. Valerie Lessa, of Concord, graduated from an eight-week Self-Advocacy Leadership Series at Bridgewater State University on Sept. 5. [Courtesy Photo] On Sept. 5, Valerie Lessa, a Minute Man Arc...
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Recent Posts

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  • Thomas Jeambon
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Recent Comments

  • E on COVID-19 Vaccine and Individuals with CdLS
  • Francesca Scognamiglio on COVID-19 Vaccine and Individuals with CdLS
  • Francesca Scognamiglio on COVID-19 Vaccine and Individuals with CdLS
  • Debbie Webster on COVID-19 Vaccine and Individuals with CdLS
  • Tracey Penfold on ‘I heard 3 things when he was finally out: ‘He’s here, he’s breathing, and he has a TON of hair!’ What a joyful moment. I say moment – because the joy only lasted that long.’

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