by Ashley Kus | May 22, 2026 | Media Room, Uncategorized
By Eddie Day Courageous Parents Network First published on ehospice. When my daughter was diagnosed with a rare and life-limiting condition, my world changed in an instant. I was thrown into an unfamiliar place that I did not recognize—a world of uncertainty, fear,...
by Ashley Kus | May 22, 2026 | Media Room, Uncategorized
by Shaun Heasley DisabilityScoop.com Advocates are working with some of the nation’s most recognizable companies in an effort to increase disability access in retail spaces. The Access Coalition, which includes companies like Starbucks Coffee Company, Walmart and CVS...
by Ashley Kus | May 22, 2026 | Media Room, Uncategorized
With a few thoughtful strategies, you can make the season both joyful and manageable—helping your child feel included, calm, and ready to celebrate. Planning for a child’s future can feel both hopeful and overwhelming—especially when the path forward isn’t always...
by Ashley Kus | May 22, 2026 | Media Room, Uncategorized
By Edgar, Daniel’s dad Submit your own dad story here! http://CdLSFoundation.memfox.io/cdlsdads25 Being Daniel’s dad is an honor. Every day I think about how blessed I am to have him as my son. Being the dad of a child with CdLS shows you how pure and...
by Ashley Kus | May 1, 2026 | Media Room, Uncategorized
We would like to extend our congratulations to our community member Jesse and his soon-to-be wife Jennifer! They are set to be married later this month. How Jesse and Jennifer Found Each Other In the Fall of 2005, Jesse Raymond Bassett and Jennifer Alicia Bakke both...
by Ashley Kus | Apr 30, 2026 | Media Room, Uncategorized
by Cannon Barnett, The Spokesman-Review/TNS DisabilityScoop.com SPOKANE, Wash. — The day Coen Tucker was born, doctors said that he was likely going to die. He had a bleed in his brain, his grandmother Linda Beedle remembers of that chaotic day in 2009. His parents...
by Ashley Kus | Apr 30, 2026 | Media Room, Uncategorized
by Brent Axe, syracuse.com/TNS DisabilityScoop.com SYRACUSE, N.Y. — NBC and Peacock will turn to Syracuse University alum Jason Benetti to lead play-by-play coverage of Major League Baseball. That’s according to a report from Front Office Sports. Benetti, 42, a former...
by Ashley Kus | Apr 29, 2026 | Media Room, Uncategorized
By: Ulziimaa Galsanvaanchig Being a mom to Daniel and Temujin is the greatest gift of my life. I’ve learned that a mother’s love means celebrating equally two very different journeys, two different kinds of growth. It means cheering with all my heart for Daniel’s...
by Ashley Kus | Apr 28, 2026 | Media Room, Uncategorized
by Sydney Maldonado, Staten Island Advance/TNS DisabilityScoop.com STATEN ISLAND, N.Y. — A ribbon cutting recently at PS 37R, the David Marquis School of the Arts, marked the opening of a new vocational learning space designed to help students with disabilities build...
by Ashley Kus | Apr 21, 2026 | Media Room, Uncategorized
By: Candice Roberts The Mighty I find myself thinking a lot about time and how quickly it passes. I am noticing it in the face of both my kids — they no longer look like a little boy and little girl — they are becoming young people too quickly. I find myself feeling...
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