by Gabbie Nadeau | Dec 3, 2018 | Media Room
Jim and Jen Pomfret are preparing to mark the fourteenth year of the One Love, One Heart 5K Walk/Run on Saturday, Dec. 8, at 10 a.m. The event supports those who have a rare genetic disorder called Cornelia de Lange Syndrome (CdLS), including their daughter, Maya....
by Gabbie Nadeau | Nov 14, 2018 | Media Room
Throughout the month of October, Cornerstone Artisanal Pizza & Craft Beer (110 Brewery Lane, Portsmouth, NH) will be joining forces with Tabitha McElroy to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. The menu will have a...
by Gabbie Nadeau | Nov 14, 2018 | Media Room
On Saturday, November 10th from 5:00 – 8:30pm, at Currahee Brewing Co. in Alpharetta, GA the 9th Annual Brew & BBQ to benefit the CdLS Foundation will be held. Last year, the event raised a net of $9,000, the highest total to date. Over the last eight years the...
by Gabbie Nadeau | Nov 14, 2018 | Media Room
The Cornelia de Lange Syndrome (CdLS) Foundation is holding its national conference, June 28 – July 1, at the Minneapolis Marriott City Center. This year’s conference theme is Building Bridges Together. The biennial event brings together more than 500 attendees,...
by Gabbie Nadeau | Nov 14, 2018 | Media Room
The Cornelia de Lange Syndrome (CdLS) Foundation is holding its Eighth Scientific and Educational Symposium, June 27- 28, at the Marriott Hotel City Center bringing together leaders in the field of CdLS research and clinical work from around the United States. Through...
by Gabbie Nadeau | Nov 14, 2018 | Media Room
National Cornelia de Lange Syndrome (CdLS) Awareness Day is observed the second Saturday of May each year in order to shed light on the little-known genetic syndrome. In 1989, the Foundation established Awareness Day to educate the nation. In honor of National CdLS...
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