CdLS Foundation Webinar Series
Each webinar will feature a professional and hosted by the CdLS Foundation’s Family Services staff.
Speech, Language, and AAC Devices
Navigating Your Health Plan
It is a challenge for just about everyone. Make sure you make the best selection possible for your family. Understanding your benefits and how to get the most from your health plan is even more important when someone has complex care needs.
Presenter: Linda Pierce, M.S.W., Program Director, Family Service
Introducing the CdLS Health Care Notebook
Selective Mutism in CdLS
Selective mutism (SM) is found to be highly prevalent in the individuals with Cornelia de Lange syndrome (CdLS). This webinar outlines what SM is, and how it manifests in CdLS. The webinar also highlights the need to consider the linguistic, behavioral and cognitive impairments that are specific to the CdLS population when assessing and treating SM. Information contained in this webinar is intended for the professionals who work with CdLS as well as the parents/caregivers of CdLS.
Presenter: Asmita Mistry, MA CCC-SLP
COVID-19 and Individuals with CdLS
Fundraising for Conference
With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips and strategies that you may find helpful to cover your expenses for Conference. She will also offer some fun ideas to help you get started on your way to your goals!
Presenter: Tasha Howland
Gastrointestinal (GI) Challenges: Critical Care and Treatment Approaches
This webinarprovided an overview of malrotation, volvulus, bowel obstruction and pancreatitis. It also reviewed treatment and care approaches to these challenges.
Presenter: Carol Potter, M.D.
Neurodevelopmental Disorders and Behavioral Management in Cornelia de Lange Syndrome (CdLS)
This webinar provided an overview of neurodevelopmental challenges, including approaches to treatment, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental disorders, including intellectual disability, autism spectrum disorder, language disorder, ADHD, aggression, repetitive self-injurious behaviors, anxiety, and depression. This webinar will discuss each of these domains as it relates to CdLS, as well as strategies for pharmacological intervention.
Presenter: Siddharth Srivastava, M.D.
How to Address Challenging Behaviors Webinar
This webinar will discuss:
• Impulse control
• Destruction of property
• Determining the appropriate consequences
• Treatment options (ABA, etc.) or professional resources for families
Presenter: Julia O’Connor, Ph.D.
Genetic Testing and CdLS
This webinar discussed:
- Clinical vs genetic testing
- Various gene mutations associated with CdLS
- Genetic testing that is available (including prenatally)
- What are the benefits of getting tested
- Are there different medical approaches to treatment for the various gene mutations