Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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June 2024

The Purple Pickle

June 15 @ 9:00 am - 12:00 pm
The Purple Pickle, 976 Brady Ave NW
Atlanta, GA 30318 United States
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Mixed Doubles Pickleball Tournament  Celebrating people with Cornelia de Lange Syndrome and disabilities.  Tournament Details June 15 | 9 AM to 12 PM The Painted Pickle 976 Brady Ave NW, Atlanta, GA 30318 Teams will advance through double elimination with teams playing one 15-point game per round. Losing once moves you to a secondary bracket, maintaining a chance for redemption. Each team will be guaranteed to play twice. Only mixed doubles teams are invited to compete. All skill levels are…

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July 2024

Nebraska Family Gathering

July 6 @ 11:00 am - 2:00 pm

Hosted by Michelle Reed, mother of Beth Ann and Christy Courtney Whetstone, mother of Bailey Aldersgate United Methodist Church, 8320 South Street, Lincoln NE We will be in the Sunshine Room and our lunch will be catered in by HyVee.

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Bulls and Barrels Series

July 13 @ 7:00 pm - 8:00 pm

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…

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Parent University: LIFE SHOULD NOT BE ALL WORK AND NO PLAY – THE IMPORTANCE OF FRIENDS

July 18 @ 1:00 pm - 2:00 pm

Let’s talk with some social programs around the country and how to learn more about them. The value of friendships, and what does that mean for you and your child. Build your own network or find one to fit into. Register now

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August 2024

Parent University: TRANSPORTATION – A BIG MISSING LINK TO SUCCESS

August 15 @ 1:00 pm - 2:00 pm

What are the options out there? Who will do the driving if you are not around? Are there any companies creating solutions to solve this need? Register now

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September 2024

Parent University: RETIRING FOR 3 – HOW TO HAVE ENOUGH FOR YOUR OWN RETIREMENT AND THEIRS, TOO

September 12 @ 1:00 pm - 2:00 pm

How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective way to fund the trust? Life insurance? IRAs? Other? How to plan your own Social Security to benefit your child’s future – Learn a technique to identify your options. Register now

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CdLS Foundation East Coast Regional Retreat

September 13 - September 15
Camp Saginaw, 740 Saginaw Road
Oxford, PA 19363 United States
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We're excited to announce the 2024 East Coast Regional Retreat.     Mark your calendars!   Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. The 2024 East Coast Regional Retreat will be September 13- 15, 2024, at beautiful Camp Saginaw in Oxford, PA. This two-day event offers educational workshops, a fun-filled and action-packed day of activities for siblings, ample time to socialize with those you know, and a wonderful opportunity to make new friends.  …

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Family Gathering – Utah

September 21 @ 12:00 pm - 3:00 pm

Hosted by Stephanie Renteria and Marci Dunning September 21, 2024 12:00 noon- 3:00 p.m. Utah's Hogle Zoo 2600 Sunnyside Ave. (840 South) Salt Lake City, UT 84108

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October 2024

Parent University: THE MYRIAD OF RESIDENTIAL OPTIONS – WHAT AND WHERE ARE THEY?

October 10 @ 1:00 pm - 2:00 pm

Let’s hear more from people who have creative scenarios – DIY, Campus, Group Homes, Independent Living. Come to this class prepared for the homework you need to do. How do you get comfortable with even starting? Listen and learn from those who have been successful in setting up and finding a solution that worked best for them. Register now

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2024 Bank of America Chicago Marathon

October 13

Many runners say that running has changed their lives.  Team CdLS runners say that they changed the lives of others.  Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon on Sunday, October 13, 2024. We are so excited to announce that we have an amazing team of 23 athletes this year!! Please support this fantastic team by donating here. Running not your thing, another way to support the team is to sign up…

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