
April 2023
Multidisciplinary Clinic for Adolescents and Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…
Find out more »CdLS Foundation Webinar Series: Navigating the Health Care System
So much of our ability to access medical and behavioral health care in the U.S. depends on a family's health insurance. Whether your health coverage is offered by your employer, purchased on a health exchange, or includes Medicaid or Medicare, understanding health insurance is a challenge for just about everyone. Making sure you make the best selection possible for your family, understand your benefits, and how to get the most from your health plan is even more important when someone…
Find out more »Understanding and Addressing Pediatric Medical Trauma
Anyone, from infancy through adulthood, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and family. Dr. Meghan Marsac, pediatric psychologist, and pediatric medical trauma expert, and Melissa Hogan, mother of a child with a rare disease, wrote the book “Afraid of the Doctor” to help families who experience stressful and potentially traumatic medical events. Join us in conversation with them to learn more about…
Find out more »May 2023
CdLS Awareness Day
CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau
Find out more »2023 New England Golf Classic
Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 30th Annual New England Golf Classic to be held on Monday, MAY 22, 2023! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camaraderie! Learn more
Find out more »October 2023
2023 Bank of America Chicago Marathon
The CdLS Foundation will once again have a fantastic Team CdLS running in Chicago! The 2023 Bank of America Chicago Marathon has been officially scheduled for October 8. Team CdLS will converge on Chicago this Fall, and to run for our precious children and adults with CdLS and their families. Team CdLS - Chicago is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner,…
Find out more »2023 MCWP & PLM Amber Gaines Memorial Golf Classic
The CdLS Foundation’s longest running major event - the MCWP & PLM Amber Gaines Memorial Golf Classic – is kicking off its 35th year on Monday, October 9, 2023, at the beautiful Tapawingo National Golf Course in St. Louis, MO. Registration and lunch begin at 11 AM with a 12:30 PM shotgun start, followed by cocktails, dinner, and prizes at 5:30 PM. Don’t miss the best golf event in the Midwest!
Find out more »2023 Baltimore Running Festival
Join Team CdLS - Baltimore for a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS).Team CdLS - Baltimore is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner, but want to get involved, contact Sherry Waitsman for ideas.
Find out more »November 2023
Multidisciplinary Clinic for Adolescents and Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…
Find out more »Giving Tuesday
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