Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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October 2019

Retiring for 3 Webinar

October 23 @ 12:00 pm - 2:00 pm

Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: How much do you need and how much does your child need? When should you take Social Security? Does Medicare matter enough to take your Social Security sooner? What will your child get in Social Security and when? What else changes for your child when You retire? Does your pension impact your child’s benefits?

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November 2019

Multidisciplinary Clinic for Adolescents and Adults

November 2
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States
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TCS New York City Marathon

November 3
New York City

TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet…

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March 2020

CdLS Clinic at Shriner’s Hospital

March 11, 2020 @ 8:00 am - 12:00 pm

Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetic lab, and physical and occupational therapy services. Shriners Hospital for Children-Salt Lake City has been…

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June 2020

Ninth Biennial CdLS Scientific & Educational Symposium

June 24, 2020 - June 25, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States + Google Map
CdLS Foundation Scientific Symposium
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CdLS National Family Conference

June 25, 2020 - June 28, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States
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