Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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March 2020

CdLS Clinic at Shriner’s Hospital

March 11, 2020 @ 8:00 am - 12:00 pm

Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetic lab, and physical and occupational therapy services. Shriners Hospital for Children-Salt Lake City has been…

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2020 United Airlines NYC Half

March 15, 2020
New York City

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 15, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • An official Team CdLS singlet • Team CdLS Swag Bag • Pre-Race Luncheon • Weekly…

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April 2020

Multidisciplinary Clinic For Adolescents And Adults

April 4, 2020
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support.…

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May 2020

2020 TD Five Boro Bike Tour

May 3, 2020
New York City

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 3, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed entry and placement in the first Start Wave • An official Team CdLS singlet • Pre-Race Luncheon • VIP Access to the Finish…

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June 2020

Ninth Biennial CdLS Scientific & Educational Symposium

June 24, 2020 - June 25, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States + Google Map
CdLS Foundation Scientific Symposium
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CdLS National Family Conference

June 25, 2020 - June 28, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States
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October 2020

2020 Bank of America Chicago Marathon

October 11, 2020
Chicago, IL

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…

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November 2020

Multidisciplinary Clinic For Adolescents And Adults

November 7, 2020
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support.…

Find out more »