Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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February 2019

Southeast Region Family Gathering

February 16, 2019
Lakes Regional Park, 7330 Gladious Drive
Fort Myers, FL 33907
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Save the date for the Southeast Region Family Gathering!  Hosted by Angie Young and being held in Fort Myers, FL.  Join families in the southeast region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS…

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2019 United Airlines NYC Half Marathon

March 17, 2019
New York City

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 17, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • An official Team CdLS singlet • Team CdLS Swag Bag • Pre-Race Luncheon •…

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Board of Directors Meeting

April 5, 2019 - April 6, 2019
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Multidisciplinary Clinic for Adolescents and Adults

April 6, 2019
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States
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Midwest Region Family Gathering

April 27, 2019
Beautiful Savior Lutheran Chuch, 7706 South 96th Street
LaVista, NE 68128 United States
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Save the date for the Midwest Family Gathering!  Hosted by Christy and Dave Whetstone!  Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring, than another parent who…

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