Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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June 2022

2nd Annual Hit the Trails in Avon, CT

June 11

Find out how to start your peer-to-peer fundraising and join CdLS Foundation families, staff and volunteers as we walk, run or bike an easy stint along one of the scenic Rail Trails in New England on the Farmington Valley Greenway Trail. Events@cdlsusa.org

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Protected Tomorrows, Parent University – How to Make Life Better: Vacations Tips & Service Dogs

June 16 @ 12:00 pm

In this class, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan to make sure this continues by adding the recreation into our planning? And what about Service Dogs; Can they bring happiness and comfort to your child’s life?

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July 2022

Protected Tomorrows, Parent University – Your Dream Team… Who Needs To Be There When You Can Not

July 21 @ 12:00 pm

We will discuss what your Child’s Dream Team should consist of, such as your legal team, your financial team, medical support, recreation coordinators and the Coaches (the caregivers and guardians), How do you put a PLAYBOOK together with all the instructions your Team needs? What questions should you be asking your Dream Team now? How do you know if they are the right people for the Team? Tips and Ideas will be discussed. How will you keep them informed going…

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August 2022

Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?

August 11 @ 12:00 pm

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.

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Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?

August 11 @ 12:00 pm

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.

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September 2022

Protected Tomorrows, Parent University – What Are the Options, What Is the Best Fit, & How to Fund Them

September 22 @ 12:00 pm

In this class, we will explain in detail, current residential options: living with your parents, Section 8 housing, CILAS, group/supportive housing, skilled nursing facilities, and Special Needs Trust ownerships/paying rent. We will talk about determining the best fit for your child and how to fund the different options.

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October 2022

2022 Bank of America Chicago Marathon

October 9
Chicago, IL

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 9, 2022, AND Agree to collect a minimum of no less than $1,250 (USD) if the entry is claimed during the application window (Tuesday, October 19, 2021 to Tuesday, November 30, 2021 at 2 pm) and $1,750 (USD) if the entry is…

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Amber Gaines Memorial Golf Classic

October 10

2022 Amber Gaines Memorial Golf Classic - Monday, October 10 This long standing Missouri golf outing is one of the CdLS Foundation's largest fundraisers. MCWP & PLM's 33rd Annual Amber Gaines Memorial Golf Classic is slated for Monday, October 10th at the Tapawingo National Golf Club. Participants will enjoy 18 holes of golf, brunch, dinner, and an opportunity to win both skill and door prizes.

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2022 Baltimore Running Festival

October 15

Join Team CdLS runners at the Baltimore Running Festival on Saturday, October 15, 2022. Here is a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS). Not sure you can handle the full 26.2 mile marathon? That's okay! There are different distances for a variety of skill levels. Walk the 5K, jog the 10k, stroll the half marathon…

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Protected Tomorrows, Parent University – Spooky Scenarios

October 20 @ 12:00 pm

What do we hear that scares families the most. We will be tracking the toughest questions from all classes, as well surveys done during the year. Come prepared with your questions. We are going to tackle the tough ones!

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