Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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September 2021

Protected Tomorrows, Parent University: Keeping “The Dream Team” Alive

September 23 @ 8:00 pm

We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success!  We will talk more in-depth about how to build this team and keep moving them forward - making it easier for your future caregiver and educating your trustee.  We will go to the NEXT LEVEL in your utilization of the Dream Team Plan to make it a reality.

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New England Charity Golf Tournament

September 27

The CdLS Foundation New England Golf Classic is set for Monday, September 27, 2021, in Ipswich, MA. Registration and breakfast begin at 7:45am with a 9am shotgun start, followed by cocktails, lunch, awards and prizes at 1:30pm. We missed this event last Spring due to the pandemic, and decided this year to move the event from May to September just to be safe. So, you haven’t missed it! To register as a player, a foursome or as a sponsor go…

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October 2021

2021 Baltimore Running Festival

October 9

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!

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2021 Bank of America Chicago Marathon

October 10

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 10, 2021 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…

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Missouri Charity Golf Tournament

October 11

The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 11th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, dinner and prizes at 5:30pm. This is the 33rd annual Foundation golf tournament in MO. It was renamed the Amber Gaines Memorial Golf Classic last year in tribute to Amber Gaines, who had CdLS, and sadly passed away last year at the age of 38. Amber was the inspiration for…

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Protected Tomorrows, Parent University: What Residential Option Is Right for Your Family?

October 21 @ 8:00 pm

Today, many people with special needs live in some type of community setting.  With many housing options to choose from, how do you choose the right one for your child.  We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other adults funded by the parents?

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November 2021

Multidisciplinary Clinic for Adolescents and Adults

November 6

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…

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TCS New York City Marathon

November 7

A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: Commit to raise a minimum of $2,500 for individuals with CdLS…

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Protected Tomorrows, Parent University: 2021 Parent University™ – A Year in Review

November 18 @ 8:00 pm

We have worked all year to take next steps.  But it is easy to get caught in THE GAP. Sometimes, when we are working toward a big goal, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have come in your planning and let’s close THE GAP. You will then see the real progress you have made for your family’s future. Then you can be…

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February 2022

CdLS Remembrance Day

February 12, 2022

Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives and friends feel tremendous loss and many times have a difficult time understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child, grandchild or sibling – they still belong and will forever be part of our journey. On February 12th, we will be celebrating CdLS Remembrance Day. We ask that our…

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