Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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June 2019

Northwest Illinois Family Gathering

June 22 @ 4:00 pm - 7:00 pm
Burning Bush Community Center, 1313 N. Burning Bush
Mount Prospect, IL 60056 United States
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July 2019

Gastrointestinal (GI) Challenges: Critical Care and Treatment Approaches

July 31 @ 1:00 pm - 2:00 pm

This webinar will: Identify malrotation Discuss signs of volvulus Discuss bowel obstruction Discuss pancreatitis Review treatment/care approaches to the above Presenter: Carol Potter, MD, Nationwide Children's Hospital

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August 2019

Missouri Family Gathering

August 17
Wonderland Camp, 18591 Miller Circle
Rocky Mount, MO 65072 United States

Hosted by the Rauba Family For more information contact Lynn Audette at

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September 2019

Saratoga Palio Melanie O’Donnell Half Marathon & 5K

September 15
Downtown Saratoga Springs, NY
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October 2019

Missouri Charity Golf Tournament

October 7
Tapawingo Golf Course, 13001 Gary Player Dr
St. Louis, MO 63127 United States
+ Google Map
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2019 Bank of America Chicago Marathon

October 13

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…

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2019 Baltimore Running Festival

October 19
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November 2019

Multidisciplinary Clinic for Adolescents and Adults

November 2
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States
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TCS New York City Marathon

November 3
New York City

TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet…

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June 2020

Ninth Biennial CdLS Scientific & Educational Symposium

June 24, 2020 - June 25, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States + Google Map
CdLS Foundation Scientific Symposium
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