February 2019
Southeast Region Family Gathering
Save the date for the Southeast Region Family Gathering! Hosted by Angie Young and being held in Fort Myers, FL. Join families in the southeast region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS…
Find out more »March 2019
Southwest Region Family Gathering
Hosted by Courtney Hegarty, AZ Regional Coordinator
Find out more »CdLS Clinic at Shriner’s Hospital in Salt Lake City, Utah
(Serving individuals with CdLS who are 18 years old and younger) For more information contact Lynn Audette at LAudette@CdLSusa.org
Find out more »2019 United Airlines NYC Half Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 17, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • An official Team CdLS singlet • Team CdLS Swag Bag • Pre-Race Luncheon •…
Find out more »April 2019
Multidisciplinary Clinic for Adolescents and Adults
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Find out more »Midwest Region Family Gathering
Save the date for the Midwest Family Gathering! Hosted by Christy and Dave Whetstone! Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring, than another parent who…
Find out more »May 2019
2019 TD Five Boro Bike Tour
Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 5, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed entry and placement in the first Start Wave • An official Team CdLS singlet • Pre-Race Luncheon • VIP Access to the…
Find out more »October 2019
2019 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…
Find out more »