March 2019
CdLS Family Gathering
Hosted by Fran Rissland, mom to Riley For more information contact Fran at fran_rissland@hotmail.com
Find out more »April 2019
Multidisciplinary Clinic for Adolescents and Adults
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Find out more »Midwest Region Family Gathering
Save the date for the Midwest Family Gathering! Hosted by Christy and Dave Whetstone! Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring, than another parent who…
Find out more »May 2019
2019 TD Five Boro Bike Tour
Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 5, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed entry and placement in the first Start Wave • An official Team CdLS singlet • Pre-Race Luncheon • VIP Access to the…
Find out more »Northeast Family Gathering
Hosted by Karen Aschenbrenner and Robert Boneberg, parents of Alex
Find out more »New England Charity Golf Tournament
Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, MA. Participants will enjoy 18 holes of golf, brunch, dinner and an opportunity to win both skill and door prizes. Register for the golf tournament here.
Find out more »October 2019
2019 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…
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