Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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June 2021

Hit the Trail for CdLS

June 25 @ 1:00 pm - 3:00 pm
Farmington Valley Greenway Trail

Come and Celebrate with us! Join members of the CdLS Foundation Board of Directors and staff as we salute 40 years of supporting our families, while raising money and enjoying the beautiful and scenic Farmington Valley Greenway Rail Train in Avon, CT. You won't want to miss this very special 40th Kick Off event on June 25th! For more information, contact Annette Scheidecker at

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Illinois Family Gathering

June 27 @ 12:00 pm - 3:00 pm
Heritage Park 1 Community Blvd Wheeling, IL 60090, 1 Community Blvd
Wheeling, IL United States
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Hosted by Charyn Beaumont, Families can stay the whole time or just drop by if they would like. It will be located under the red and white striped tent at Heritage Park in Wheeling. The sign up genius created is where you can sign up to bring desserts/drinks/snacks. Deli/Sub sandwiches will be provided.

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July 2021

Protected Tomorrows, Parent University: Ways to Support Siblings in Special Needs Families

July 15 @ 8:00 pm

Having a sibling with special needs is a reality many children are born into.  The advantages to having a sibling with special needs are numerous and include being more empathetic, more responsible and more resilient. However, these siblings also shoulder tremendous burdens that are not often or easily discussed.  We will talk about the role siblings play in day-to-day life and how to include, educate, and support them.

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August 2021

Protected Tomorrows, Parent University: Transition Programs & Schools – What is the Right Choice?

August 19 @ 8:00 pm

Finding the transition program that best meets the needs of your child with a disability is so important.  We will discuss the different types of programs, what type of program is best for your child, what types of community-based programs are out there, what programs will benefit your child, and how can you fund the programs your child attends.

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September 2021

Protected Tomorrows, Parent University: Keeping “The Dream Team” Alive

September 23 @ 8:00 pm

We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success!  We will talk more in-depth about how to build this team and keep moving them forward - making it easier for your future caregiver and educating your trustee.  We will go to the NEXT LEVEL in your utilization of the Dream Team Plan to make it a reality.

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New England Charity Golf Tournament

September 27
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October 2021

2021 Baltimore Running Festival

October 9

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!

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2021 Bank of America Chicago Marathon

October 10

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 10, 2021 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…

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Missouri Charity Golf Tournament

October 11
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Protected Tomorrows, Parent University: What Residential Option Is Right for Your Family?

October 21 @ 8:00 pm

Today, many people with special needs live in some type of community setting.  With many housing options to choose from, how do you choose the right one for your child.  We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other adults funded by the parents?

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