Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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June 2020

Parent University: Taking Control of the Legal Mumbo Jumbo

June 18 @ 8:00 pm - 9:00 pm

Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple, and knowing what the legal “talk” means, how it applies to you and your family, and what you really need, is so important to the big picture of the future. Sometimes we need help. The level of help we need it often defined by the kinds of help we need. In this part of the session, let’s discuss all of the option that…

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Ninth Biennial CdLS Scientific & Educational Symposium

June 24 - June 25
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States + Google Map
CdLS Foundation Scientific Symposium

This event has been POSTPONED. More details to come.

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CdLS National Family Conference

June 25 - June 28
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States

This event has been CANCELED. We are excited to announce important information regarding the 2022 CdLS Foundation National Family Conference! The Conference will be held in Tulsa, OK from June 23-26. Be sure to check out all of our information to get your fundraising plans going! 

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2020 CdLS Foundation Virtual Conference

June 25 @ 12:00 pm - June 26 @ 4:00 pm

Join worldwide CLS experts for a two-day virtual conference. Speakers will discuss topics ranging from behavior, gastrointestinal (GI) challenges, gene changes and a medical panel featuring the United States Medical Director, Antonie Kline, MD. Viewers can choose to attend one or both days. One-day attendance is $25, and two-day attendance is $40. Registration opens on May 29 and closes on June 22. This Conference is a great learning opportunity for families; caregivers; medical, educational and therapeutic professionals; and researchers wanting…

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August 2020

Parent University: The Recipe for Financial Success

August 20 @ 8:00 pm - 9:00 pm

There are a myriad of insurance plans to understand. Health insurance, life insurance, disability insurance, long term care insurance – what to use, when? What makes sense? The ABLE account rules are so confusing, and you don’t want to make a mistake. We will review the basics of the ABLE account and how to select the right plan for you. How do we tie these accounts into the rest of our financial plan? Now that you have all the ingredients,…

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September 2020

Parent University: Your Child Is Aging Out … What Now?

September 17 @ 8:00 pm - 9:00 pm

Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place, it’s about the right home, continuing education, job opportunities, recreation, and the rest that makes life safe and fulfilling.

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October 2020

2020 Bank of America Chicago Marathon

October 11
Chicago, IL

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…

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Missouri Charity Golf Tournament

October 12
Tapawingo Golf Course, 13001 Gary Player Dr
St. Louis, MO 63127 United States
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Parent University: Retirement Planning – A Family Affair

October 15 @ 8:00 pm - 9:00 pm

Saving for the long term, understanding all of the opportunities and pitfalls, and knowing how family coordinated plans are key to our success is not often discussed. Understand the questions to ask, the numbers to crunch, and the ways we need to work together in our planning to be successful.

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November 2020

Multidisciplinary Clinic For Adolescents And Adults

November 7
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support.…

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