August 2020
Parent University: The Recipe for Financial Success
There are a myriad of insurance plans to understand. Health insurance, life insurance, disability insurance, long term care insurance – what to use, when? What makes sense? The ABLE account rules are so confusing, and you don’t want to make a mistake. We will review the basics of the ABLE account and how to select the right plan for you. How do we tie these accounts into the rest of our financial plan? Now that you have all the ingredients,…
Find out more »September 2020
Parent University: Your Child Is Aging Out … What Now?
Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place, it’s about the right home, continuing education, job opportunities, recreation, and the rest that makes life safe and fulfilling.
Find out more »October 2020
2020 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…
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Parent University: Retirement Planning – A Family Affair
Saving for the long term, understanding all of the opportunities and pitfalls, and knowing how family coordinated plans are key to our success is not often discussed. Understand the questions to ask, the numbers to crunch, and the ways we need to work together in our planning to be successful.
Find out more »November 2020
Multidisciplinary Clinic For Adolescents And Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support.…
Find out more »Parent University: Progress Report / Goal Setting Time
A look at how the small steps you started out with this year are adding up to real progress in planning for your family’s future and to set your goals for the next year.
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