• California Family Gathering

    Join families from California for a CdLS Foundation-sponsored Family Gathering. Saturday, November 8, 2025 11:00 a.m. - 3:00 p.m. P.T. Graciously hosted by: Traci, mother to Jacob Weber Sweet Shade Ability Center 15 Sweet Shade Irvine, CA 92606 Family Gatherings are planned with your whole family in mind. There will be activities for everyone. You'll […]

  • Children Have Spiritual Lives, Too. Exploring the Way Children Connect in Their World.

    Join CPN and chaplain and researcher Amanda Borchik, MDiv, BCC to learn about the ways children express their unique spirituality and to discuss ways that we as parents, caregivers and clinicians can nurture their spirit. This event will take place on Monday, November 10th at 8:00 pm ET (7:00 pm CT, 6:00 pm MT, 5:00 […]

  • Honoring Our Love: Navigating Grief During the Holidays Support Group

    Honoring Our Love: Navigating Grief During the Holidays A Supportive Gathering for Parents Who Have Lost a Child with CdLS The holiday season is often described as a time of joy, celebration, and togetherness. But for parents who have experienced the profound loss of a child, these months can also bring waves of grief, longing, […]

  • CdLS Foundation November Virtual Support Group for Parents

    The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. The November Support Group topic will be resources. Thursday, November 13, 2025 7:00 – 8:15 p.m. ET 📍Topic: Resources We believe no parent should walk this path alone at the CdLS Foundation. […]

  • Giving Tuesday

    Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and make a difference. This special day is all about turning generosity into action, and it’s the perfect opportunity to support the CdLS Foundation. Whether you […]

  • Virtual Support Groups for Parents

    The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, December 4, 2025 🕖 7:00 – 8:15 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

  • 2026 Regional Retreat

    Join us at CYJ Retreat Center in Woodcreek, Texas, from May 29 to 31, 2026, for a tranquil weekend retreat with friends who share your unique journey. The registration cost is an all-inclusive, per-person rate encompassing programming such as workshops and “Meet the Experts,” sibling camp, all meals, location facilities, activities, and lodging. Individuals with […]

  • 2026 Bank of America Chicago Marathon

    Lace up and join Team CdLS for the BOA Chicago MarathonOctober 11, 2026 Grant Park, Chicago IL Join us for our 27th year in the BOA Chicago Marathon. Experience the excitement of Marathon Weekend and the thrill of thousands of people cheering you , as well as our amazing Curb Crew as you run (and […]