August 2021
Protected Tomorrows, Parent University: Transition Programs & Schools – What is the Right Choice?
Finding the transition program that best meets the needs of your child with a disability is so important. We will discuss the different types of programs, what type of program is best for your child, what types of community-based programs are out there, what programs will benefit your child, and how can you fund the programs your child attends.
Find out more »September 2021
Protected Tomorrows, Parent University: Keeping “The Dream Team” Alive
We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success! We will talk more in-depth about how to build this team and keep moving them forward - making it easier for your future caregiver and educating your trustee. We will go to the NEXT LEVEL in your utilization of the Dream Team Plan to make it a reality.
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October 2021
2021 Baltimore Running Festival
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
Find out more »2021 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 10, 2021 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…
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Protected Tomorrows, Parent University: What Residential Option Is Right for Your Family?
Today, many people with special needs live in some type of community setting. With many housing options to choose from, how do you choose the right one for your child. We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other adults funded by the parents?
Find out more »November 2021
Multidisciplinary Clinic for Adolescents and Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…
Find out more »TCS New York City Marathon
A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: Commit to raise a minimum of $2,500 for individuals with CdLS…
Find out more »Protected Tomorrows, Parent University: 2021 Parent University™ – A Year in Review
We have worked all year to take next steps. But it is easy to get caught in THE GAP. Sometimes, when we are working toward a big goal, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have come in your planning and let’s close THE GAP. You will then see the real progress you have made for your family’s future. Then you can be…
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