This is it! The final Bulls and Barrels Event of the seriesPrize Buckles will be awarded, and Hollywood Harris will be there to entertain the crowd– you don’t want to miss this! Adults $10, Students $5 and 5 and under are free At Carters Arena in Chiefland, FL. Have some rodeo fun while raising awareness […]
Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child, grandchild, or sibling – they still […]
12PM at Eckerd College Campus GO Pavilion 4200 54th Ave. S St. Petersburg, FL More details to come.
International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day serves as an opportunity for families, advocates, and healthcare professionals to unite in raising awareness and promoting early diagnosis, research, and support for individuals affected […]
Run for those who cannot - join Team CdLS Many athletes say that running has changed their lives. Team CdLS athletes change the lives of others as they raise awareness and funds for the CdLS community. Join the Cornelia de Lange Syndrome (CdLS) Foundation for our 26th year at the world-renowned Bank of America Chicago Marathon on Sunday, October 12, 2025. Funds […]
Tapawingo National Golf ClubSunset Hills, MOMore details to follow
