August 2024
Parent University: TRANSPORTATION – A BIG MISSING LINK TO SUCCESS
What are the options out there? Who will do the driving if you are not around? Are there any companies creating solutions to solve this need? Register now
Find out more »Bulls and Barrels Series
Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…
Find out more »September 2024
Parent University: RETIRING FOR 3 – HOW TO HAVE ENOUGH FOR YOUR OWN RETIREMENT AND THEIRS, TOO
How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective way to fund the trust? Life insurance? IRAs? Other? How to plan your own Social Security to benefit your child’s future – Learn a technique to identify your options. Register now
Find out more »CdLS Foundation East Coast Regional Retreat
We're excited to announce the 2024 East Coast Regional Retreat. Mark your calendars! Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. The 2024 East Coast Regional Retreat will be September 13- 15, 2024, at beautiful Camp Saginaw in Oxford, PA. This two-day event offers educational workshops, a fun-filled and action-packed day of activities for siblings, ample time to socialize with those you know, and a wonderful opportunity to make new friends. …
Find out more »Family Gathering – Utah
Hosted by Stephanie Renteria and Marci Dunning September 21, 2024 12:00 noon- 3:00 p.m. Utah's Hogle Zoo 2600 Sunnyside Ave. (840 South) Salt Lake City, UT 84108
Find out more »Bulls and Barrels Series
Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…
Find out more »October 2024
WI Road Race
Lace up your …. And get ready to walk, run and have fun while supporting the CdLS Foundation. Meet Zachary Isaiah Guran! He is 3 years old and was born with a rare syndrome called Cornelia de Lange Syndrome. Zach is an incredibly resilient kid. He consistently deals with some sort of discomfort daily. He struggles with hearing, and he is non-verbal which makes communication and caring for Zach very complicated. Some of his biggest challenges include feeding, swallowing, digestive…
Find out more »Parent University: THE MYRIAD OF RESIDENTIAL OPTIONS – WHAT AND WHERE ARE THEY?
Let’s hear more from people who have creative scenarios – DIY, Campus, Group Homes, Independent Living. Come to this class prepared for the homework you need to do. How do you get comfortable with even starting? Listen and learn from those who have been successful in setting up and finding a solution that worked best for them. Register now
Find out more »2024 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon on Sunday, October 13, 2024. We are so excited to announce that we have an amazing team of 23 athletes this year!! Please support this fantastic team by donating here. Running not your thing, another way to support the team is to sign up…
Find out more »2024 MCWP & PLM Amber Gaines Memorial Golf Classic
The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 14th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, dinner and prizes at 5:30pm. This is the 36th annual Foundation golf tournament in MO. It was renamed the Amber Gaines Memorial Golf Classic last year in tribute to Amber Gaines, who had CdLS, and sadly passed away at the age of 38. Amber was the inspiration for the tournament…
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