Meet the Experts

The CdLS Foundation enlists help from various experts in the medical, educational and professional fields to provide families with the most up-to-date information and advice.

The CdLS Foundation’s Clinical Advisory Board (CAB) and Professional Development Committee (PDC) are comprised of some of the foremost specialists in the fields of genetics, education, research, psychiatry and much more.  Many volunteer their time to answer questions through our Ask the Expert service and provide consultations at family gatherings and Conference.


  • Dale Dorsett, Ph.D., Biochemistry & Molecular Biology
  • Jennifer Gerton, Ph.D., Biochemistry & Molecular Biology
  • Marco Grados, M.D., M.P.H., Child Psychiatry
  • Ian Krantz, M.D., Clinical Genetics
  • Laird Jackson, M.D., Clinical Genetics
  • Matthew Deardorff, M.D, Ph.D., Clinical Genetics
  • Yves Lacassie, M.D., Clinical Genetics
  • Antonie Kline, M.D., Clinical Genetics
  • Trevor Hoffman, M.D., Ph.D., Clinical Genetics
  • Arthur Lander, M.D., Ph.D., Developmental Biology
  • Joseph McCleery, Ph.D., Developmental Neuroscientist
  • Alena Egense, MGC, CGC, Genetic Counselor
  • Amy Kimball, M.S., Genetic Counselor
  • Sara Raible, M.S., Genetic Counselor
  • Natalie Blagowidow, M.D., Gynecology, Genetics
  • Michele Lambert, M.D., Hematologist
  • Soma Jyonouchi, M.D., Immunology
  • Clair Francomano, M.D., Internal Medicine, Genetics
  • Soma Das, Ph.D., FACMG, Molecular Genetics
  • Anne Calof, Ph.D., Neurodevelopmental Biology
  • Kari Cunningham-Rosvik, APRN, Nurse Practitioner
  • Ronald Berger, M.D., Ophthalmology
  • Aaron Zuckerberg, M.D., Pediatric Anesthesia, PICU
  • Jeff Rockow, M.D., Pediatric Cardiology
  • Douglas Clemens, D.M.D., Pediatric Dentistry
  • Richard Mungo, D.D.S., Pediatric Dentistry
  • Rochelle Lindemeyer, D.D.S., Pediatric Dentistry
  • Joni Rampolla, L.D., Pediatric Dietetics
  • Loretta Gore-Harvey, R.D., L.D.N., Pediatric Dietetics
  • Carol Potter, M.D., Pediatric Gastroenterology
  • Kathleen Loomes, M.D., Pediatric Gastroenterology
  • Lynette Gillis, M.D., Pediatric Gastroenterology
  • Kristen Baranano, Pediatric Neurology
  • Lynne Kerr, M.D., Pediatric Neurology


  • Alex Levin, M.D., Pediatric Ophthalmology
  • Christianne Schoedel, M.D., Pediatric Ophthalmology
  • Susan Schloff, M.D., Pediatric Ophthalmology
  • Stacey Ishman, M.D., Pediatric Otolaryngology
  • Katherine Farr, D.P.T., Physical Therapy
  • Mark Kliewer, M.D., Radiology
  • Richard Haaland, Ph.D., Research
  • Cheri Carrico, Ph.D., CCC-SLP, Speech-Language-Feeding
  • Patti Caudill, M.S., CCC-SLP; Speech-Language-Feeding
  • Nancy Mathis, M.S., CCC-SLP, Speech-Language Pathology
  • Ming-Hsien Wang, M.D., Urology




  • Geir Rosvik, M.Ed., Adaptive Physical Education
  • Julia O’Connor, Ph.D., Clinical Psychology
  • Mary Pipan, M.D., Developmental Pediatrician
  • Denise Williams, MS, Early Childhood Education
  • Urbi Ghosh, Ph.D., Education
  • Rachel Hueston, Education
  • Mary Beth Bruder, Ph.D., Educational Psychology
  • Ingrid Barone, R.N., Nursing
  • Christine Ackermann, M.S., O.T., Occupational Therapy
  • Joann Fleckenstein, M.S., O.T., Occupational Therapy


  • Amy Metrena, M.S.P.T., Physical Therapy
  • Mary Levis N.C.S.P., School Psychology
  • Barbara Galyean, M.Ed., Special Education Assessmentsy
  • Roger Woerner, B.S., SpEd., Special Education Behavior Management
  • Shelly Champion, M.Ed., Special Education
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