by Ashley Kus | Sep 12, 2024 | Media Room, Uncategorized
By: Sharonza P. Elijah may be smaller than other nine-year-old kids, but he is big in personality, energy, wit, kindness, and snacks. Elijah is a great help to his classmates at school. He is very observant and quite mischievous. He enjoys getting into anything and...
by Ashley Kus | Sep 5, 2024 | Uncategorized
By: Gabriella, Kalani’s mom Kalani just turned 1 in July! We recently got his diagnosis in June. He has several GI issues, growth restrictions, and slightly delayed development. We are learning more and more about CdLS every day. We often contact the foundation,...
by Ashley Kus | Sep 4, 2024 | Research News, Uncategorized
By: the CdLS Foundation Family Service Team Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, which causes a range of physical, cognitive, and medical challenges. While there have been many advances in the diagnosis and treatment of CdLS,...
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