by Gabbie Nadeau | Jun 10, 2021 | Uncategorized
Thank you for scanning the QR code on the Walgreens Scannable event poster to learn more about the five Ambassadors! Meet Taryn! Taryn is 13 years old and has CdLS, but that does not define her as a person. It merely helps explain some of the challenges she...
by Gabbie Nadeau | May 3, 2021 | Uncategorized
As we know COVID-19 has changed the way we interact and socialize with others. Most of our high function adults with CdLS were struggling with managing changes to their daily routine such as not being able to; attend day programs, return back to work or go out into...
by Gabbie Nadeau | Apr 19, 2021 | Uncategorized
A fun way to celebrate Awareness Day is to do a random act of kindness for someone in your community. Whether it is buying the coffee for the person behind you in the Dunkin Donuts drive through, or leaving your favorite book for someone to find. These actions can...
by Gabbie Nadeau | Apr 2, 2021 | Uncategorized
Planning on hosting on a virtual trivia fundraiser for Awareness Day? Use this helpful guide to have a smooth and fun night with friends and family. 4-6 Weeks Before Event: Choose a date and time for the event. Contact Annette Scheidecker to set up a fundraising page....
by Gabbie Nadeau | Apr 2, 2021 | Uncategorized
Since 1989, the CdLS Foundation has been celebrating CdLS Awareness Day in order to shed light on this often misdiagnosed, little-known genetic syndrome. The second Saturday of May is CdLS Awareness Day and there are many ways you can help individuals living with this...
by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...
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