You Asked, We Answered: Seizure concerns

You Asked, We Answered: Seizure concerns

By CdLS Foundation Clinical Advisory Board (CAB) Can you please respond to these concerns and the course that the treatment and evaluation should take? Is it unusual for seizures to develop at this age? Do most children with CdLS manifest them earlier in life? Our son...
Sibling Story

Sibling Story

By Natalie, Kalani’s sibling What do you feel is the coolest thing about your sister/brother? Kalanis is such a special little guy. He’s small and super cute, and he always does his own thing without worrying about what anyone else thinks. He’s really good at...