by Gabbie Nadeau | Jan 20, 2023 | Uncategorized
Join Team CdLS at the 2023 Bank of America Chicago Marathon. Go the distance in 2023 by joining Team CdLS in Chicago! Have fun and raise funding to support families impacted by this rare genetic disorder. Walk away from the race with new friends, a sense of...
by Gabbie Nadeau | Jan 18, 2023 | Media Room, Uncategorized
By Stanley Clark, Guest Contributor Workplace inclusivity for people with genetic and chronic conditions is a critical issue affecting millions worldwide. For example, when you’re struggling with a severe condition, it can be hard to decide whether to keep...
by Francesca Scognamiglio | Jan 11, 2023 | In Memoriam
Alice McClanahan. Where do I start? You were the single most amazing surprise I could of ever of asked for. You changed everyone around you. You touched so many hearts. I got to be so lucky as to walk this life with you until you were called home. I hope you’re...
by Francesca Scognamiglio | Jan 10, 2023 | In Memoriam
Delainey Noelle Christensen was our first baby and we were excitedly waiting her arrival. I had a complicated pregnancy with severe hyperemesis however we only thought our baby would be born smaller than average. Delainey was born at 35 weeks, weighing in at 3lbs 4ozs...
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