by Ashley Kus | Jul 30, 2024 | Media Room, Uncategorized
On July 24, $1,500 was raised for Team CdLS – athletes running the 2024 Bank of America Chicago Marathon in October for the Cornelia de Lange Syndrome (CdLS) Foundation. CdLS is a rare genetic spectrum disorder that causes a broad range of physical, cognitive,...
by Ashley Kus | Jul 25, 2024 | Media Room, Uncategorized
Mike F. raised nearly $50,000 for the CdLS Foundation earlier this month during his annual backyard obstacle course. The event was Mike’s 15th year of fundraising in honor of his son Connor, who was born with the genetic disorder Cornelia de Lange Syndrome, or...
by Ashley Kus | Jul 25, 2024 | Media Room, Uncategorized
By: Nick and Cindy G. Meet Zachary! He is three years old and was born with a rare syndrome called Cornelia de Lange Syndrome. Zach is an incredibly resilient kid. He consistently deals with some discomfort daily. He struggles with hearing and is non-verbal,...
by Ashley Kus | Jul 23, 2024 | Uncategorized
By: Amelia S. Hi, I’m Amelia. This is my husband, Brandon, and our son Wilson. Wilson was born in November of 2020. If being pregnant during a global pandemic wasn’t stressful enough, at 28 weeks, we discovered Wilson was growing at a slower rate and had a heart...
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