by Francesca Scognamiglio | Feb 17, 2022 | In Memoriam
My little son Thomas only lived 7 weeks but my memories of him will last my lifetime. He was loved and I miss him.
by Francesca Scognamiglio | Feb 15, 2022 | In Memoriam
Adrian Illyana was only with us for 9 weeks but we got to spend most of that precious time with her in the comfort of our home. She was born full term breech at only 3 lbs 8 oz in May 2020, early in the pandemic. Despite insurmountable health challenges, she navigated...
by Francesca Scognamiglio | Feb 15, 2022 | In Memoriam
Anya was a teacher to so many of us: family, friends, teachers! She was funny, sneaky, and very challenging. Anya was tube-fed until 2 1/2 yrs old, walked at 5 years (when she weighed 20 lbs!,) and even though her mom is a Speech Pathologist !, she never talked. Anya...
by Francesca Scognamiglio | Feb 2, 2022 | In Memoriam
Jocelyne passed just short of her 43 birthday. Born in 1978 at 1 lb. 3 oz she had been a fighter her entire life. Despite her disabilities she taught our family, and all who knew her, more about unconditional love and compassion than you could imagine. Give her a...
by Francesca Scognamiglio | Feb 2, 2022 | In Memoriam
Jessica was a perfectly wonderful little human being. She had a smile that melted my heart. It was unconditional love that bonded us forever. With the odds stacked against her, Jessica had to try much harder than “regular” folks to communicate and be...
by Francesca Scognamiglio | Feb 1, 2022 | In Memoriam
Our sweet girl Denise was born in 1974 when not much was known about CdLS. Thank goodness for the formation of the CdLS Foundation which became a great source of information and support for families. She lived her entire 47 years with her parents and taught us much...
by Francesca Scognamiglio | Feb 1, 2022 | In Memoriam
Adam was born during the time when families were just beginning to find each other, first through the newsletter, and then through the Foundation. He was a mystery to his doctors, educators, therapists and family but everyone fell in love with him immediately! He was...
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