Stand by Me

Three simple words with such a resounding message. Through every milestone, triumph and heartache, the CdLS Foundation has been by the side of individuals with CdLS and their families.

However, we haven’t been there alone. Over the last year, so many lives have been made better because YOU chose to stand by our community with us. Shoulder to shoulder. Heart to heart. Thank you.

Will you continue stand by us? With your support we can make this an even stronger year for all. Please consider giving generously. Your donation truly makes all the difference.

Become Part of a Winning Team!

A smile from a child with CdLS. A “thank you” from a parent. These things inspire Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of children with this little-known syndrome. As a Team CdLS member, you are provided a guaranteed entry into the United Airlines New York City Half Marathon with the understanding that you will meet the race’s requirements to:

• Commit to raise a minimum of $1,000 for children with CdLS
• Pay all fees associated with entering and participating in the race (registration, accommodations and transportation)

Other ways to give.

Team CdLS

When you run, swim, bike or tackle a “tough mud” challenge, make your miles count for more than just distance. Join Team CdLS and help fund valuable programs, services and support to families across the country –– at no charge to them.

Start today! »

Other Donation Options

When you donate to the Foundation through your employer, sponsorships or legacy giving, you help educate professionals, provide research opportunities, and keep support lines open for families in need.

Help fuel our mission. »

Create Your Own Fundraiser

Ready to host your own fundraiser, but feeling a little overwhelmed by everything that has to be done? We’ve developed a number of turn-key toolkits to help guide you through the process.

Find out more. »