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Local Restaurant Raises Funds to Assist Woman Bringing Awareness to Rare Disease

by Gabbie Nadeau | Nov 14, 2018 | Media Room

Throughout the month of October, Cornerstone Artisanal Pizza & Craft Beer (110 Brewery Lane, Portsmouth, NH) will be joining forces with Tabitha McElroy to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. The menu will have a...

9th Annual Brew & BBQ Benefiting the Cornelia de Lange Syndrome (CdLS) Foundation, Nonprofit Working with Individuals with Rare Disorder

by Gabbie Nadeau | Nov 14, 2018 | Media Room

On Saturday, November 10th from 5:00 – 8:30pm, at Currahee Brewing Co. in Alpharetta, GA the 9th Annual Brew & BBQ to benefit the CdLS Foundation will be held. Last year, the event raised a net of $9,000, the highest total to date. Over the last eight years the...

National Nonprofit Holds Conference, Encourages Families to Build Bridges, in Minneapolis MN

by Gabbie Nadeau | Nov 14, 2018 | Media Room

The Cornelia de Lange Syndrome (CdLS) Foundation is holding its national conference, June 28 – July 1, at the Minneapolis Marriott City Center. This year’s conference theme is Building Bridges Together. The biennial event brings together more than 500 attendees,...

Medical & Educational Leaders Gather at National Genetic Disorder Symposium

by Gabbie Nadeau | Nov 14, 2018 | Media Room

The Cornelia de Lange Syndrome (CdLS) Foundation is holding its Eighth Scientific and Educational Symposium, June 27- 28, at the Marriott Hotel City Center bringing together leaders in the field of CdLS research and clinical work from around the United States. Through...

Local Nonprofit Rallies for National CdLS Awareness Day

by Gabbie Nadeau | Nov 14, 2018 | Media Room

National Cornelia de Lange Syndrome (CdLS) Awareness Day is observed the second Saturday of May each year in order to shed light on the little-known genetic syndrome. In 1989, the Foundation established Awareness Day to educate the nation. In honor of National CdLS...
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Recent Posts

  • Run for a Worthy Cause
  • Workplace Inclusivity for People with Genetic and Chronic Conditions
  • Alice McClanahan
  • Delainey Christensen
  • Medical PTSD: It’s Real and Impacts My Everyday Life

Recent Comments

  • Nancy Paquet on ‘I heard 3 things when he was finally out: ‘He’s here, he’s breathing, and he has a TON of hair!’ What a joyful moment. I say moment – because the joy only lasted that long.’
  • Reba on ‘I heard 3 things when he was finally out: ‘He’s here, he’s breathing, and he has a TON of hair!’ What a joyful moment. I say moment – because the joy only lasted that long.’
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  • Sara Everett on ‘I heard 3 things when he was finally out: ‘He’s here, he’s breathing, and he has a TON of hair!’ What a joyful moment. I say moment – because the joy only lasted that long.’
  • Maggie Gladson on Team CdLS: Runner Spotlight – Aimee Schiferl

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