Jocelyne passed just short of her 43 birthday. Born in 1978 at 1 lb. 3 oz she had been a fighter her entire life. Despite her disabilities she taught our family, and all who knew her, more about unconditional love and compassion than you could imagine. Give her a piece of chocolate and she would giggle and spin like a top. She, her family, her contemporaries, and her care givers benefited from the efforts of the Cornelia de Lange Syndrome Foundation to share information about the CdL Syndrome. Those we love don’t go away, they walk beside us everyday. Unseen, unheard, but always near, so loved, so missed, so very dear.

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