The CdLS Blog
Targeted Gene Sequencing, Bone Health, and Body Composition in Cornelia de Lange Syndrome
Abstract The aim of this study was to evaluate bone health and body composition by dual-energy X-ray absorptiometry (DXA) in individuals with Cornelia de Lange Syndrome (CdLS). Overall, nine individuals with CdLS (five females, all Caucasian, aged 5–38 years) were...
![COVID-19 Vaccine and Individuals with CdLS](https://www.cdlsusa.org/wp-content/uploads/2021/01/vaccine-update-1-940x675.png)
COVID-19 Vaccine and Individuals with CdLS
Update as of November 2021, We now have COVID immunization for 5-12 year olds. This is a lower dose, because their immune system is so much better and quicker than those of teens and adults. We strongly encourage all children with CdLS at those ages to receive the...
![Celebrating Norm](https://www.cdlsusa.org/wp-content/uploads/2020/10/Norm-donately-page-4-1080x675.png)
Celebrating Norm
Norm Winnerman, valued member of the CdLS Foundation will be receiving the Rare Impact Award from NORD. NORD will be honoring all exceptional awardees, virtually, on October 9, 2020 at 7:00 pm EST. The award honors his years of service as a pioneer, mentor and...
![UPSTREAM ARTS Offering WEEKLY CLASSES to the CdLS Community](https://www.cdlsusa.org/wp-content/uploads/2020/04/Upstream-Arts.png)
UPSTREAM ARTS Offering WEEKLY CLASSES to the CdLS Community
Minneapolis, MN based Upstream Arts is inviting the CdLS community into the virtual world for weekly Live Streaming Zoom classes. As parents of a 28 year old child with CdLS who inspired Upstream Arts' work and mission, we hope we can bring some play and joy into your...
![Teaching Remotely for Grades K – 12 | Free Resources and Strategies](https://www.cdlsusa.org/wp-content/uploads/2020/04/HOMEPAGE-HERO-V2-1080x500.jpg)
Teaching Remotely for Grades K – 12 | Free Resources and Strategies
Scholastic's Learn at Home provides free active learning resources to help reinforce and sustain educational opportunities for students who are unable to attend school. You can keep the learning going with these special cross-curricular journeys. Every day includes...
![Protected Tomorrows: Parent University](https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University-1080x675.png)
Protected Tomorrows: Parent University
Protected Tomorrows will continue to provide their free Parent University webinars. If you have time to listen to the prior classes while you are staying in place at home, consider this an opportunity to do some planning. They look forward to helping you move forward...
![Resources from CdLS Experts](https://www.cdlsusa.org/wp-content/uploads/2020/03/Professional-Resources-blog-post.png)
Resources from CdLS Experts
With social distancing, school closures and many other essential services being closed due to COVID-19. We have compiled a list from our CdLS experts on in-home therapies that you can do with your loved ones to ensure that they are still working on their well-being....
![COVID-19 CdLS Foundation Update](https://www.cdlsusa.org/wp-content/uploads/2020/03/COVID-19-Foundation-Update-1.png)
COVID-19 CdLS Foundation Update
Updated: 3/27/2020 3:52 PM We have been able to gather more information regarding CdLS and COVID-19. "Individuals with CdLS and immune deficiency have "antibody immune deficiency". Antibodies are not a critical part of the immune system necessary for fighting...
![Ways to Relax at Home](https://www.cdlsusa.org/wp-content/uploads/2020/03/Ways-to-relax-at-home-blog-post.png)
Ways to Relax at Home
Having your loved ones home with you for the past few weeks can be stressful. Schedules have changed, home learning is a new and stressful process, therapies are different and you are holding it together. You rock! However, at the end of the day, you are also drained....
![Free Webinar Announced – A Rare Response: Addressing the COVID-19 Pandemic](https://www.cdlsusa.org/wp-content/uploads/2020/03/NORD-webinar-series.png)
Free Webinar Announced – A Rare Response: Addressing the COVID-19 Pandemic
Are you a rare patient or caregiver with concerns related to the COVID-19 outbreak? Do you need strategies for coping, staying healthy and reducing anxiety during this uncertain period? Please join NORD for a special webinar featuring Dr. Marshall Summar, Chief,...
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