The CdLS Blog

By Disability Scoop, Shaun Heasle Federal officials are finalizing a rule that they say will yield the largest expansion of rights for airline passengers with disabilities in a generation. Under the regulation published last month, the U.S. Department of...

by Shauna Muckle, Tampa Bay Times/TNS disabilityscoop.com Mary Benhart’s family gushed about Disney World’s willingness to accommodate people with disabilities in an ad for the company last year. “You can actually relax as a special-needs family,” Benhart said,...

By Lindsey's Family Our journey with Lindsey, who was diagnosed with Cornelia de Lange Syndrome (CdLS)NIPBL mutation, has been filled with challenges, triumphs, and invaluable lessons. From medical hurdles like feeding struggles, hearing loss, and seizures to...

By Oliver's Family Oliver is an incredible 8-year-old boy who was diagnosed with CdLS (missense NIPBL mutation) when he was 9-months-old. Ollie has secondary diagnoses of central auditory processing disorder and epilepsy - but thankfully his seizures have been under...

By Gunner's Family Gunner was born January 9, 2021, a month early. He was in NICU for 3 ½ months and he was diagnosed with CdLS, and our life was forever changed. Gunner is now 3 ½ years old and he is feed by feeding tube. Gunner does not walk but he just started to...

By Sydney's Family Sydney is currently 14 years old and in 8th grade. She loves going on airplanes, staying at hotels and Airbnbs. She was really excited for this trip. She loves doing gymnastics, swimming, and jumping on the trampoline. She adores her sister and...

By PSN Team parentingspecialneeds.org Did you know that there are over 8,000 different sports in this world? Yes, 8,000! There are physical sports, mind sports, board sports, equestrian sports, the list goes on. There is even a sport called “Wifecarrying” if you can...

By Mikayla's Family Mikayla was a Special Olympics gold medal winner in 8th grade at the Illinois State Games. She loves music from classical to country and everything in between. Her favorite food is sushi. You will always find her wearing red nail polish. She LOVES...