The CdLS Blog
Meet Sydney
By Sydney's Family Sydney is currently 14 years old and in 8th grade. She loves going on airplanes, staying at hotels and Airbnbs. She was really excited for this trip. She loves doing gymnastics, swimming, and jumping on the trampoline. She adores her sister and...
Sports Adapted to Your Child’s Abilities
By PSN Team parentingspecialneeds.org Did you know that there are over 8,000 different sports in this world? Yes, 8,000! There are physical sports, mind sports, board sports, equestrian sports, the list goes on. There is even a sport called “Wifecarrying” if you can...
Meet Mikayla
By Mikayla's Family Mikayla was a Special Olympics gold medal winner in 8th grade at the Illinois State Games. She loves music from classical to country and everything in between. Her favorite food is sushi. You will always find her wearing red nail polish. She LOVES...
You Asked, We Answered: What communication devices should we consider?
By CdLS Foundation Clinical Advisory Board (CAB) Speech (and communication device) What should the speech therapist be doing to help my 2 ½-year-old daughter start talking? My daughter has been seeing a speech therapist since birth. We would like to know if the...
You Asked, We Answered: What should we do about sleep issues?
By CdLS Foundation Clinical Advisory Board (CAB) Sleep Difficulties Mother reports irregular sleep patterns and states that son only has restful sleep when he has taken his Tegretol (it knocks him out). What are your thoughts of cause or suggestions of treatment? If...
You Asked, We Answered: Dealing with Teen Mood Swings
By CdLS Foundation Clinical Advisory Board (CAB) Mood Swings My teenage daughter is very high functioning; however, the older she gets, the more rigid and unwilling to accept changes in daily routines she becomes. She will cry uncontrollably, or become reclusive until...
Navigating Communication Issues
By CdLS Foundation Clinical Advisory Board (CAB) Nonverbal Communication In a 9 year old male, squealing and grunting are the only vocal sounds. Should this be discouraged? We’d appreciate any guidance on teaching him to communicate “yes/no.” Are squealing and...
The Parts, Pieces, And Timeline of Transitioning Into Adulthood
Posted By Claudia Axelrod, Dr. Shane T. Spiker, And Holly Downs parentingspecialneeds.org Adulthood is a challenge for anybody. Each of us moves toward a level of independence we didn’t previously have and is expected to be more responsible than at any other time in...
Meet Our Volunteers
We're Anabel and Joey, parents of Ophelia Perez, a strong-willed, always happy, and playful little girl. Naturally, when asked to become Regional Coordinators in Florida, we jumped at the opportunity. Ophelia "Ophe" was diagnosed with CdLS at age 4; before her CdLS...
Meet Izaak
By Izaak's family Izaak is small, mighty, and thinks he’s our boss. He embodies a colossal presence, captivating those around him with his indomitable spirit and unyielding determination. Despite his small size, he commands attention, not through volume or...
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