The CdLS Blog
Workplace Inclusivity for People with Genetic and Chronic Conditions
By Stanley Clark, Guest Contributor Workplace inclusivity for people with genetic and chronic conditions is a critical issue affecting millions worldwide. For example, when you're struggling with a severe condition, it can be hard to decide whether to keep working....
Medical PTSD: It’s Real and Impacts My Everyday Life
www.themighty.com Most of us don’t like going to the doctor or getting blood drawn or being in a hospital. But can you go so far as to say you’re traumatized by it? Some of us can. Medical trauma or medical post-traumatic stress disorder is painfully...
Finding Dental Care For Those With IDD Can Be Difficult. A Dentist Wants To Change That
by Marin Wolf, The Dallas Morning News/TNS | www.disabilityscoop.com DALLAS — The first time Ella Jacobs met Dr. Dan Burch, she was on the verge of tears. Jacobs was afraid Burch, a clinical assistant professor at Texas A&M College of Dentistry, would tell her the...
Delta Works To Make Air Travel More Inclusive
by Ebony Williams, The Atlanta Journal-Constitution/TNS | www.disabilityscoop.com As the holiday travel season gears up, Delta Air Lines is offering resources to travelers with autism spectrum disorder. Delta is offering an inclusive experience at the Atlanta and...
Disney Adds Dolls In Wheelchairs To ‘It’s A Small World’
by Shaun Heasley | www.disabilityscoop.com Disney’s iconic “It’s a Small World” ride is getting an update to be more inclusive of people with disabilities. Two dolls in wheelchairs have been added to the ride at Disneyland Resort in California. The new animatronic...
Sensory-Friendly Santa Coming To Hundreds Of Locations Nationwide
by Shaun Heasley | www.disabilityscoop.com As the holiday season gets underway, hundreds of malls will offer individuals with disabilities a special opportunity to meet with Santa Claus without the hubbub that such visits often entail. Roughly 500 shopping centers...
Inspiring Individuals: Asmita and Kavin
Inspiring Individuals Asmita and Kavin Mistry Kavin is a 23-year-old young man who has a strong affinity for music. He loves to sing songs in multiple languages, from genres and artists around the world. Music motivates and energizes him, but it also calms and soothes...
Team CdLS: Runner Spotlight – Jane Champion
My name is Jane and I am is running in the 2022 Chicago Marathon as part of Team CdLS in honor of my sister Julie, who has Cornelia de Lange Syndrome (CdLS), and to support the CdLS Foundation. CdLS is a rare genetic syndrome present from birth, which causes a range...
Team CdLS: Runner Spotlight – Hannah Brockstein
My name is Hannah Brockstein. I grew up in the suburbs of Chicago, but am currently getting my Ph.D. in Clinical Psychology at Ohio University in Athens, OH. My parents and I had planned to run the 2020 Chicago Marathon with Team CdLS in memory of my brother, Jason....
Team CdLS: Runners Spotlight – Rachel Terry and Kyle DeAngelis
My name is Rachel Terry. My boyfriend, Kyle DeAngelis, and I both live in Saratoga Springs, NY. I was born in Johnson City, NY. Kyle was born and raised in Syracuse, NY. Our motivation for running with Team CdLS is to help make others more aware of CdLS and run for a...
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