The CdLS Blog

Meet Trey

Meet Trey

By Trey's family Trey is the sweetest 2-year-old boy with CdLS! He carries the HDAC8 gene, and we love our little boy so much. I’ve always heard people say “happy baby syndrome” and wow does that describe Trey to a T! He is always smiling and laughing and just wants...

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Strengthening Your Parenting Partnership

Strengthening Your Parenting Partnership

Guidance from: Nancy Frumer-Styron, Psy.D Psychologist and Grief Counselor Courageous Parents Network A child’s serious illness impacts a parenting partnership in many ways, prompting the family to discover new means of coping and communicating. For those parents who...

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Meet Abby

Meet Abby

By Abby's Family “Your one best day is Abby’s every day.” That’s often what we tell people about Abby. Abby is the ray of sunshine on a cloudy day and never without a smile or laugh. She knows only joy and happiness, a welcome blessing for all who know her. Abby and...

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Types of behavior assessments

Types of behavior assessments

By Erica Patino Expert reviewed by Elizabeth Harstad, MD, MPH understood.org *Behavior assessments are different from tests that screen for learning differences. They don’t have right or wrong answers. Instead, they look at how kids interact with their world. These...

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