The CdLS Blog

Awareness Day Idea – Random Acts of Kindess

Awareness Day Idea – Random Acts of Kindess

A fun way to celebrate Awareness Day is to do a random act of kindness for someone in your community. Whether it is buying the coffee for the person behind you in the Dunkin Donuts drive through, or leaving your favorite book for someone to find. These actions can...

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Host a Virtual Trivia Night

Host a Virtual Trivia Night

Planning on hosting on a virtual trivia fundraiser for Awareness Day? Use this helpful guide to have a smooth and fun night with friends and family. 4-6 Weeks Before Event: Choose a date and time for the event. Contact Annette Scheidecker to set up a fundraising page....

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CdLS Awareness Day 2021

CdLS Awareness Day 2021

Since 1989, the CdLS Foundation has been celebrating CdLS Awareness Day in order to shed light on this often misdiagnosed, little-known genetic syndrome. The second Saturday of May is CdLS Awareness Day and there are many ways you can help individuals living with this...

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COVID-19 Vaccine and Individuals with CdLS

COVID-19 Vaccine and Individuals with CdLS

Update as of November 2021, We now have COVID immunization for 5-12 year olds. This is a lower dose, because their immune system is so much better and quicker than those of teens and adults. We strongly encourage all children with CdLS at those ages to receive the...

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Celebrating Norm

Celebrating Norm

Norm Winnerman, valued member of the CdLS Foundation will be receiving the Rare Impact Award from NORD. NORD will be honoring all exceptional awardees, virtually, on October 9, 2020 at 7:00 pm EST. The award honors his years of service as a pioneer, mentor and...

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