The CdLS Blog

By Honest's Family Meet Honest! Honest loves fruit snacks, crackers, and her stuffed animals. She enjoys singing along to her favorite songs, like twinkle twinkle little star, and she loves to jump on the trampoline. When I was pregnant with Honest, she was small, but...

By Rachael's Family This is Rachael, she will be turning thirty-two in May. She has overcome so many obstacles but lives everyday to the fullest. Her older sister, who is an RN and has worked in the Emergency Room for many years, asked if she could take over the care...

By Kathleen's Family Meet Kathleen — our sweet and spirited four-year-old! She’s a very special girl with an HDAC8 variant, and every day she amazes us with her strength and joy. Kathleen loves going to school, especially her wonderful program for children who are...

by Shaun Heasley DisabilityScoop.com A major home furnishings retailer is introducing a new line of products designed to make life easier for people with disabilities. Ikea said this month that it is rolling out a collection of accessible items for the home. The line...

By CdLS Foundation Clinical Advisory Board (CAB) Can you please respond to these concerns and the course that the treatment and evaluation should take? Is it unusual for seizures to develop at this age? Do most children with CdLS manifest them earlier in life? Our son...

By Natalie, Kalani's sibling What do you feel is the coolest thing about your sister/brother? Kalanis is such a special little guy. He’s small and super cute, and he always does his own thing without worrying about what anyone else thinks. He’s really good at knowing...

By Julie Rawe Understood.org At a glance Many districts are trying to make summer school more fun and engaging. Some kids may be eligible for special education services during the summer. Summer learning options can range from free programs at public schools or...

by Shaun Heasley  DisabilityScoop.com Microsoft, Nintendo and other big players in the world of video games are banding together to make it easier for people with disabilities to know if games are accessible. The companies will begin adding special tags to their games...

Originally by Maggie Fusek, Patch Staff Patch.com Emily Peterson, a former teacher and mom to a disabled daughter, wants to see a Magical Bridge Playground in her town of Healdsburg, CA, specifically at Laura Fish Somersal Park, known informally as Saggio Hills Park...

By: Parenting Special Needs parentingspecialneeds.mydigitalpublication.com Exercise is a crucial life skill that can benefit our children (and ourselves) with physical development, cognitive functions, anxiety reduction, mobility, and more. Learn how to motivate your...