A Message on Gene Therapy

To all our member families, We want to address the issue of Cornelia de Lange Syndrome and gene therapy, both to dispel any rumors that have been circulating and to paint a realistic picture of where things stand right now. Gene therapy is a recent advance in the...
CdLS NATIONAL CONFERENCE UPDATE

CdLS NATIONAL CONFERENCE UPDATE

Dear Members of the CdLS Community: In light of the growing public health concern around COVID-19 and the global potential for public transmission, we have a responsibility to the CdLS community to minimize the risk associated with spreading the virus. As a result,...
Goodbye Lynn

Goodbye Lynn

After 23 years of dedicated service, Lynn will hang up her CdLS cape and walk off into the sunset. Lynn’s retirement is bittersweet for those of us who have had the pleasure of working with her. She can always be counted on to for her dedication to the families, her...