by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
On Friday, February 10, Emma Pietrafesa was given a magic wheelchair to kick off the Boynton Beach Barrier Free 5K celebration weekend. The 10-year-old was named the official starter of the race earlier this year. The wheelchair was unveiled at a pre-race ceremony at...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
Laird G. Jackson, MD, FFACMG, was honored with the 2017 American College of Medical Genetics and Genomics (ACMG) Foundation David L. Rimoin Lifetime Achievement Award. Dr. Jackson became involved with CdLS from 1962 to the present, and even mentored current CdLS...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
On March 9, 2017, the CdLS Foundation was announced as an official One by One Award Recipient. This is the second time the Foundation has been honored with a $500 promotional products grant to use toward awareness materials. One by One is the charitable giving program...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
In March of 2017, the CdLS Foundation launched a t-shirt jersey campaign with the first-ever personalization option. Inspired by mom Samantha McClanahan, the Foundation collaborated with a local, independent printing shop in Lawrence, Kansas. After a two-week sale,...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
Our friend Demetri was recently featured in Woman’s Day Magazine with his therapy horse, Sweet Pea. The two first met last year at an infant development center in Kansas. Demetri is deaf, nonverbal and legally blind, which are common characteristics of CdLS, but...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
The Mercer County Professional Counselors Association (MCPCA) recently recognized local high school seniors for their community service efforts and academic achievements. The 15 students were hosted at the 22nd annual scholarship breakfast reception at Mercer County...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
Dr. Haaland is currently the President of the CdLS Foundation Board of Directors What is something about CdLS or the Foundation that people might not know, but should? Many families recognize the Foundation for one or two things, since that’s what they call the...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
When you think about your child’s care team, you probably think about their teachers, grandparents, therapists and medical care professionals. You may also think about the staff at the CdLS Foundation as part of this team. However, there is one care team member...
by Gabbie Nadeau | Oct 17, 2018 | In Memoriam
A lot of people think that it requires a distinctive or special type of family to raise a child with special needs but that’s far from the truth. In all actuality, it is that child that creates the “special” family. I know this is true because Nikki was that child for...
by Gabbie Nadeau | Oct 17, 2018 | In Memoriam
Our son Andrew, like so many other CdLS children had multiple physical and cognitive challenges to deal with in his life. As he got older, keeping him safe became a 24×7 job. Managing his life, was a time consuming, logistically complicated, and sometimes...
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