by Gabbie Nadeau | Oct 18, 2018
My son is 13-years-old and seems to be starting puberty. He’s had a growth spurt in the last 5 months, his physique is filling out and he is just starting to show signs of pubic hair. I am thinking about the future for him and hope for him to be able to enjoy...
by Gabbie Nadeau | Oct 18, 2018
My 8-year-old daughter was diagnosed with precocious puberty. Her physician is recommending Lupron depot. Has this been effective with other girls with CdLS? Precocious puberty occurs typically before age 8 in girls. Regarding the treatment, Lupron depot is the only...
by Deirdre Summa | Oct 18, 2018
My son who has CdLS is now 13 years old. Last year we did not proceed with his doctor’s recommended testosterone therapy because of the possible stress and side effects it may have caused our son. He is now 127 centimeters (around 4 feet, 3 inches) in height and...
by Gabbie Nadeau | Oct 18, 2018
My infant son has micrognathia and a high arched palate. Can a procedure do more harm than good? Can elongators work? The pediatrician thinks there is no urgency because he is accepting bottle-feeding quite well. However, another physician indicated that his...
by Whitney Rinaldi | Oct 19, 2018
What is Microcephaly, its cause and prognosis? Microcephaly by definition is “small head” by measurement of circumference. This can be congenital (someone is born with it, as is the case with CdLS) or acquired (in which the individual’s head size...
Recent Comments