by Gabbie Nadeau | Oct 18, 2018
What are nasal polyps and how do you know that your child has them? What symptoms would indicate the presence of nasal polyps or the need for treatment? What treatments are recommended? Nasal polyps are benign growths that can partially or completely occlude the nose,...
by Gabbie Nadeau | Oct 18, 2018
What is the maximum acceptable dosage of Prilosec? Does it depend on the age and weight of the person? What are your feelings on the long-term use of Prilosec? Have you seen adverse side effects? Prilosec (omeprazole), Prevacid (lanzoprazole) and Protonix...
by Francesca Scognamiglio | Oct 18, 2018
Two times in the past month my daughter has had C. Difficile resulting from antibiotics taken after bowel surgery. We are concerned as the physicians tell us this is a very difficult bacteria to combat. C. Difficile is a bacterium that occurs normally in your stool....
by Francesca Scognamiglio | Oct 18, 2018
Depo-Provera shots were recommended over the patch for my daughter. She presently uses the patch. She is having bad cramps on her week off the patch after 3 months on it. The patch seemed less invasive, but now I wonder if we should have used the depo instead. We...
by Francesca Scognamiglio | Oct 18, 2018
I am looking for some help regarding nutrition. My daughter is 17, and is about 4’3″. The problem is she is 124 lbs. About 30 pounds too heavy, I believe. The weight gain started with the addition of birth control pills to control her periods. At our last...
by Francesca Scognamiglio | Oct 16, 2018
What is the maximum acceptable dosage of Prilosec. Does it depend on the age and weight of the person? What are your feelings on the long-term use of Prilosec? What other medications can be used? Prilosec (omeprazole), Prevacid (lanzoprazole) and Protonix...
by Ashley Kus | Aug 1, 2024 | Media Room, Uncategorized
By: Ginny, Bella’s Mom Bella is an outdoor-loving, curious 10-year-old who stands 41 inches tall and weighs 29 pounds. She has an oversized personality in a tiny package. She is goofy and has recently found her need for independence. Using a “nubby”...
by Gabbie Nadeau | Jan 18, 2023 | Media Room, Uncategorized
By Stanley Clark, Guest Contributor Workplace inclusivity for people with genetic and chronic conditions is a critical issue affecting millions worldwide. For example, when you’re struggling with a severe condition, it can be hard to decide whether to keep...
by Ashley Kus | Sep 26, 2024 | Media Room, Uncategorized
Lisa T., Dorian’s Mom On January 17, 2001, Dorian was diagnosed with CdLS after her pediatrician noticed that she had only gained four pounds since birth despite being breast-fed. Despite not showing any limb abnormalities, Dorian’s slow growth raised...
by Ashley Kus | Sep 25, 2024 | Media Room, Research News, Uncategorized
If you’re new to the CdLS Family you’re probably very interested in learning whether your child with CdLS is mildly, moderately, or severely affected. The following article, written by Dr. Antonie Kline, CdLS Foundation Medical Director focuses on the genetic...
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