by Gabbie Nadeau | Oct 18, 2018
In other families that went on to have other children after having one child with CdLS, how many were again affected by CdLS? A random mutation implies that every pregnancy has the same likelihood of producing a child with CdLS, but are families at a higher risk for...
by Francesca Scognamiglio | Oct 18, 2018
Can certain diets improve behavioral issues? My sonís neurochiropractor suggests the use of diet (i.e. eliminate wheat and dairy) to assist in neurological development (including improvements in behavior). Most of his patients are autistic but he has found that...
by Gabbie Nadeau | Oct 18, 2018
Is tracheomalacia common in CdLS? I certainly have heard of some children with CdLS having had tracheomalacia, although I don’t think that it is that common. It is a softening of the trachea, which causes part of the airway to collapse during inspiration. There...
by Whitney Rinaldi | Oct 19, 2018
My daughter began her period at age 12. It had always been very light. She is 19 now and somewhere along the way she stopped getting it altogether. I’ve noticed that the only time she gets it now is when she is sick and on antibiotics. Then she gets it lightly for two...
by Whitney Rinaldi | Oct 18, 2018
We have twins, which were conceived via the IVF process. Only one twin is affected with CdLS. As part of the IVF process my wife produced numerous eggs, which were processed and made embryos. Two were placed into her (hence the twin boys), while we froze approximately...
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