The CdLS Blog

On Friday, February 10, Emma Pietrafesa was given a magic wheelchair to kick off the Boynton Beach Barrier Free 5K celebration weekend. The 10-year-old was named the official starter of the race earlier this year. The wheelchair was unveiled at a pre-race ceremony at...

Laird G. Jackson, MD, FFACMG, was honored with the 2017 American College of Medical Genetics and Genomics (ACMG) Foundation David L. Rimoin Lifetime Achievement Award. Dr. Jackson became involved with CdLS from 1962 to the present, and even mentored current CdLS...

On March 9, 2017, the CdLS Foundation was announced as an official One by One Award Recipient. This is the second time the Foundation has been honored with a $500 promotional products grant to use toward awareness materials. One by One is the charitable giving program...

In March of 2017, the CdLS Foundation launched a t-shirt jersey campaign with the first-ever personalization option. Inspired by mom Samantha McClanahan, the Foundation collaborated with a local, independent printing shop in Lawrence, Kansas. After a two-week sale,...

Our friend Demetri was recently featured in Woman's Day Magazine with his therapy horse, Sweet Pea. The two first met last year at an infant development center in Kansas. Demetri is deaf, nonverbal and legally blind, which are common characteristics of CdLS, but made...

Dr. Haaland is currently the President of the CdLS Foundation Board of Directors What is something about CdLS or the Foundation that people might not know, but should? Many families recognize the Foundation for one or two things, since that's what they call the...

When you think about your child's care team, you probably think about their teachers, grandparents, therapists and medical care professionals. You may also think about the staff at the CdLS Foundation as part of this team. However, there is one care team member who...