The CdLS Blog

Meet Hani!

Meet Hani!

By: Nabeela I am so grateful to have this angel in my life. I cannot describe her in a few lines. She's someone whom I never imagined existed in this world. Born on May 27, 2022, this little human couldn't breathe for a couple of months. She was diagnosed with CDLS on...

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Back to School Basics

Back to School Basics

By: Family Services With the new school year right around the corner, it's time to prepare your child for the transition back to the classroom. Parents and children may feel both joy and dread about the academic year, but there are ways to make returning to school...

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A Guide For Grandparents and Extended Family

A Guide For Grandparents and Extended Family

By: Courageous Parents Network, Inc INTRODUCTION Being a Valued Support Grandparents and extended family members often find that the serious illness of a beloved child brings out their most well-intentioned impulses: to love, to support, to find ways to express...

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Meet Paisley!

Meet Paisley!

By: Lillian Paisley Mei is four and is a bundle of inspiration and joy, and we could not be more grateful for her. She was in the hospital for the first 371 days of her life, where she endured many surgeries and treatments. She has been diagnosed with CdLS and...

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A Parent’s Guide to Self-Care

A Parent’s Guide to Self-Care

Guidance from: Nancy Frumer-Styron, Psy.D Psychologist and and Content Director, Courageous Parents Network and contributing parent Barbara Swoyer www.courageousparentsnetwork.org INTRODUCTION A low priority that is actually a must It's easy to view self-care as a low...

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Meet Jasmine!

Meet Jasmine!

 By: Katie and Jennifer  How Jasmine Inspires Mom  By, Katie  Jasmine Rose is five years old and our first-born princess. She was born weighing 4lbs and 6oz and spent the first 56 days of her life in the NICU. She is now 22lbs and the happiest little big girl you've...

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Activities for end of summer fun!

Activities for end of summer fun!

By: Family Services A great way to try and prevent the summer slide is by getting kids out into the community and looking for ways to embed learning in everyday routines. This type of enrichment doesn't have to be expensive or require travel. Below are some ideas that...

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Summer Safety

Summer Safety

Family Service  Team  With its warmth and sunshine enticing us to be outside, summer temperatures and activities can pose some safety hazards. Here are some tips for keeping kids safe.  Keep Hydrated and Cool  Many children with special needs can be more susceptible...

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