The CdLS Blog

Team CdLS: Runner Spotlight – Jane Champion

Team CdLS: Runner Spotlight – Jane Champion

My name is Jane and I am is running in the 2022 Chicago Marathon as part of Team CdLS in honor of my sister Julie, who has Cornelia de Lange Syndrome (CdLS), and to support the CdLS Foundation. CdLS is a rare genetic syndrome present from birth, which causes a range...

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Team CdLS: Runner Spotlight – Hannah Brockstein

Team CdLS: Runner Spotlight – Hannah Brockstein

My name is Hannah Brockstein. I grew up in the suburbs of Chicago, but am currently getting my Ph.D. in Clinical Psychology at Ohio University in Athens, OH. My parents and I had planned to run the 2020 Chicago Marathon with Team CdLS in memory of my brother, Jason....

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Team CdLS: Runner Spotlight – Aimee Schiferl

Team CdLS: Runner Spotlight – Aimee Schiferl

My name is Aimee Schiferl. I was born and raised in the suburbs of Chicago. I graduated from Loyola University Chicago in December 2020. I have been living and working in Chicago since. I am a tax accountant and had a  busy season where I did not see the light of day...

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Team CdLS: Runner Spotlight – Peter Wagner

Team CdLS: Runner Spotlight – Peter Wagner

I live with my wife, Kathy, in Cape Neddick, Maine - the very southern tip of Maine - right along the coast. We also have a cottage in Boothbay, Maine - up the coast about two hours. Much of my running is along the ocean's edge - cool breezes and great views! My...

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How the Empowerment Team Dealt with COVID-19

How the Empowerment Team Dealt with COVID-19

As we know COVID-19 has changed the way we interact and socialize with others. Most of our high function adults with CdLS were struggling with managing changes to their daily routine such as not being able to; attend day programs, return back to work or go out into...

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Awareness Day Idea – Random Acts of Kindess

Awareness Day Idea – Random Acts of Kindess

A fun way to celebrate Awareness Day is to do a random act of kindness for someone in your community. Whether it is buying the coffee for the person behind you in the Dunkin Donuts drive through, or leaving your favorite book for someone to find. These actions can...

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Host a Virtual Trivia Night

Host a Virtual Trivia Night

Planning on hosting on a virtual trivia fundraiser for Awareness Day? Use this helpful guide to have a smooth and fun night with friends and family. 4-6 Weeks Before Event: Choose a date and time for the event. Contact Annette Scheidecker to set up a fundraising page....

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