The CdLS Blog

By Erica Patino Expert reviewed by Elizabeth Harstad, MD, MPH understood.org *Behavior assessments are different from tests that screen for learning differences. They don’t have right or wrong answers. Instead, they look at how kids interact with their world. These...

By Child Mind Institute understood.org *When children have emotional or behavioral problems, the earlier they get treatment, the easier it is to help them. But as parents, you also want to avoid unnecessary treatment and costs in both time and money. There are times...

Posted By Michele Gianetti parentingspecialneeds.org Happy New Year! And that means it’s resolution time, is it not? Go to any home shopping channel on the new year and you will see it for yourself. Treadmills, healthy home delivery food services, exercise mats…. the...

By Laura Tagliareni, PhD understood.org Many siblings have times when they don’t get along. They may argue, tease, and call each other names. It happens in families with or without a child with learning and thinking differences like dyslexia and ADHD. But when a child...

By Disability Scoop, Shaun Heasle Federal officials are finalizing a rule that they say will yield the largest expansion of rights for airline passengers with disabilities in a generation. Under the regulation published last month, the U.S. Department of...

by Shauna Muckle, Tampa Bay Times/TNS disabilityscoop.com Mary Benhart’s family gushed about Disney World’s willingness to accommodate people with disabilities in an ad for the company last year. “You can actually relax as a special-needs family,” Benhart said,...

By Lindsey's Family Our journey with Lindsey, who was diagnosed with Cornelia de Lange Syndrome (CdLS)NIPBL mutation, has been filled with challenges, triumphs, and invaluable lessons. From medical hurdles like feeding struggles, hearing loss, and seizures to...

By Oliver's Family Oliver is an incredible 8-year-old boy who was diagnosed with CdLS (missense NIPBL mutation) when he was 9-months-old. Ollie has secondary diagnoses of central auditory processing disorder and epilepsy - but thankfully his seizures have been under...

By Gunner's Family Gunner was born January 9, 2021, a month early. He was in NICU for 3 ½ months and he was diagnosed with CdLS, and our life was forever changed. Gunner is now 3 ½ years old and he is feed by feeding tube. Gunner does not walk but he just started to...