The CdLS Blog

by Shaun Heasley DisabilityScoop.com Dozens of concert venues coast to coast operated by one of the biggest names in entertainment are now certified as sensory inclusive and more are expected to come on board soon. Live Nation says that 25 music venues it operates...

By Bransen's family Bransen is 9 years old and is such a blessing! He lights up the room when he walks in. He is unique and such a fun kid, labeled Class Clown. He loves anything related to music. He is a drummer and loves to drum. Dancing and acting silly are his...

by Shaun Heasley DisabilityScoop.com The nation’s pediatricians are getting new guidelines for how to go about evaluating children who present with global developmental delay or intellectual disability. Doctors should use genetic testing to assess children early,...

Protected Tomorrows Sadly, one out of every two marriages in the United States now ends in divorce. The many details involved in planning for a child with special needs in a divorce often fall to the wayside, as a myriad of other considerations consume the attention...

Tara Drinks understood.org The routines of the school year often fall by the wayside during the summer. In some ways, that’s a good thing. Kids (and parents) need a break from the pressures of the school year. But for kids with ADHD, ditching routines entirely can...

Sourced from findresources.co.uk Communication Challenges Challenging behaviors may arise in individuals with CdLS, leading to ineffective communication. Frustrations often occur when the individual is misunderstood or struggles to convey their thoughts clearly....

https://specialedresource.com/ Common questions educators receive from parents are:  What is the best Summer schedule for kids? Should my child do school work over summer break?   Will my special needs child fall more behind if he takes a break for the Summer?  The...

DisabilityScoop.com by Shaun Heasley For individuals with disabilities, the road to becoming an independent adult can be especially challenging. A new film finds one man on the cusp of this transition seeking advice from notable disability activists. “The Ride Ahead”...

As seen in Reaching Out By: Julia O’Connor, Ph.D., Clinical Advisory Board Member, CdLS Foundation and Clinical Psychology, Kennedy Krieger Institute  Marco Grados M.D., M.P.H., Clinical Advisory Board Member, CdLS Foundation and Child Psychiatry, Johns Hopkins...

Earlier this month, the Bynum family raised funds and awareness for Cornelia de Lange Syndrome (CdLS) through a biking, skating, and "anything with wheels" event in Licht Park, MI. The fundraiser, "Rolling for Paige," honored Paige Bynum. Paige was diagnosed with...