By CdLS Foundation Clinical Advisory Board (CAB)
Do individuals with CdLS gain weight in a regular basis?
It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own pace. Maximizing calories can be tried (but I do not think it always helps) through the help of a nutritionist. At the infancy stage it can be done through high-calorie formula. Probably, only with time will the weight add up. Some families will feed at night to get more calories in, but again I don’t think overall it helps too much.
TK 7-13-10
Legal Disclaimer: Please take note that the CdLS Foundation’s Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.
*Each individual with CdLS’ journey will be different and your loved one may not have the same experience as stated above. For more individualized assistance regarding this topic, please reach out to Family Service at familyservicesteam@CdLSusa.org or visit www.cdlsusa.org/ask-the-expert/
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