The CdLS Blog

On August 16, Cornelia de Lange Syndrome (CdLS) Foundation Board Member Mike Feehan raised over $45,000 during his annual Backyard Obstacle Course in honor of his son Connor, 17, who has CdLS.   Since Connor was a year old, Feehan has participated in various "runs",...

By Shelley Thompson Can you share the moment you first learned about your grandchild’s CdLS diagnosis? How did you feel, and what helped you through that time? I learned Bransen has CdLS when he was just a baby. It didn’t change anything because I knew he was going to...

By, Jennifer Inspired by this story? Submit your own grandparent story here - http://CdLSFoundation.memfox.io/cdlsgrandparents Jasmine (Jazzy Roo) is my first of three grandchildren. She stole the hearts of her Poppy and me through the weekly high-risk scans and...

By www.epmagazine.com Tips for Parents Preparing for a Child’s Future  More than two decades ago, when I began my career at Regional Center of Orange County working with people with developmental disabilities, only a very small number of adults we served were employed...

By Oliver's family Meet Oliver! Oliver is a 9-year-old boy with CdLS who brings light, energy, and kindness wherever he goes. He is the 2025 Team CdLS Chicago Event Ambassador! He lives in the western suburbs of Chicago with his family: Molly (mom), Andrew (dad),...

www.childrenandscreens.org Infancy and early childhood are critical developmental windows for the acquisition of foundational language skills that affect many aspects of development over the course of one’s lifetime.  The increasing availability of interactive and...

By Shaun Heasley DisabilityScoop.com Physicians are being told to play a bigger role in ensuring that children with disabilities have access to needed augmentative and alternative communication technologies. In a clinical report out this month, the American Academy of...

by Shaun Heasley DisabilityScoop.com Dozens of concert venues coast to coast operated by one of the biggest names in entertainment are now certified as sensory inclusive and more are expected to come on board soon. Live Nation says that 25 music venues it operates...

By Bransen's family Bransen is 9 years old and is such a blessing! He lights up the room when he walks in. He is unique and such a fun kid, labeled Class Clown. He loves anything related to music. He is a drummer and loves to drum. Dancing and acting silly are his...