The CdLS Blog

On the Cover – Cambrian

On the Cover – Cambrian

Written by Jennifer and Gary, Cambrian’s Parents Cambrian is smart, sweet, and full of personality! He loves undivided attention, being held, and snuggled close. With three lively siblings — Cameron, Camylle, and Campbell — there’s never a dull moment in the house. He...

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A Spooky Tale, A Board Game, and a Wake Up Call

A Spooky Tale, A Board Game, and a Wake Up Call

Effie Parks CTNNB1 🧬 Host of Once Upon A Gene Podcast 👨‍👩‍👧‍👦 Empowering families navigating rare diseases We went to Suncadia last weekend, it’s just over the mountain pass and our kids’ favorite place. It’s where Casey and I got married so it has magic for us too....

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Life after School Ends

Life after School Ends

PSN Team Once kids begin school, the years after kindergarten seem to pass so swiftly that before we know it, we’re sitting at graduation. Then what? If you are not planning on higher education, it’s time to start planning for employment options. Thankfully, most...

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CARE COORDINATION AND PERSONAL CARE

CARE COORDINATION AND PERSONAL CARE

By Antonie D. Kline, M.D., CdLS Foundation Medical Director There are known factors about being a parent. Parents respond naturally to their infant’s cries and work to provide nourishment, clean diapers, clothes, and shelter. As children age, they are brought to the...

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