The CdLS Blog

UK research on Cornelia de Lange Syndrome

The Cerebra Centre for Neurodevelopmental Disorders is organized through the School of Psychology at the University of Birmingham. Their work focuses on difficulties experienced by children and adults who have intellectual disabilities, autism spectrum disorders and...

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CdLS Foundation named One by One grant recipient

CdLS Foundation named One by One grant recipient

On March 9, 2017, the CdLS Foundation was announced as an official One by One Award Recipient. This is the second time the Foundation has been honored with a $500 promotional products grant to use toward awareness materials. One by One is the charitable giving program...

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Showing Your Team Spirit

Showing Your Team Spirit

In March of 2017, the CdLS Foundation launched a t-shirt jersey campaign with the first-ever personalization option. Inspired by mom Samantha McClanahan, the Foundation collaborated with a local, independent printing shop in Lawrence, Kansas. After a two-week sale,...

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Therapy Animals and CdLS

Therapy Animals and CdLS

Our friend Demetri was recently featured in Woman's Day Magazine with his therapy horse, Sweet Pea. The two first met last year at an infant development center in Kansas. Demetri is deaf, nonverbal and legally blind, which are common characteristics of CdLS, but made...

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Your “CdLS Family” Doctor

Your “CdLS Family” Doctor

When you think about your child's care team, you probably think about their teachers, grandparents, therapists and medical care professionals. You may also think about the staff at the CdLS Foundation as part of this team. However, there is one care team member who...

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