The CdLS Blog

Cornelia de Lange syndrome in diverse populations

Leah Dowsett Antonio R. Porras Paul Kruszka Brandon Davis Tommy Hu Engela Honey Eben Badoe Meow‐Keong Thong Eyby Leon Katta M. Girisha Anju Shukla Shalini S. Nayak Vorasuk Shotelersuk Andre Megarbane Shubha Phadke Nirmala D. Sirisena Vajira H. W. Dissanayake Carlos R....

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How to Plan Finances to Raise a Special-Needs Child

By Paul SullivanThe New York Times (https://nyti.ms/2RanViN) Carole and Michael Maguire were careful to plan early for the financial needs of their daughter Ally, who is now 19 and attends the Riverview School on Cape Cod, Mass.Credit Credit Kieran Kesner for The New...

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My Experience Attending the 2018 ASHA Convention

Michele Champion, M.Ed., Special Education, CdLS Foundation Professional Development Committee I recently had the opportunity to attend an ASHA (American Speech-Language-Hearing Association) Convention in Boston. ASHA is the national association for members and...

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Facial recognition zeroes in on genetic disorders

Dr. Olaf Bodamer wasn’t sure what was wrong with the 3-year-old boy he recently examined at Boston Children’s Hospital, but he had a hunch. The child’s muscle tone was weak, and he had taken longer than expected to start walking and talking. He also had unusual facial...

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UK research on Cornelia de Lange Syndrome

The Cerebra Centre for Neurodevelopmental Disorders is organized through the School of Psychology at the University of Birmingham. Their work focuses on difficulties experienced by children and adults who have intellectual disabilities, autism spectrum disorders and...

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