By CdLS Foundation Clinical Advisory Board (CAB)
How often should the child’s teeth be brushed? Is there a particular toothbrush recommended?
All individuals with CdLS should have their teeth brushed (or brush themselves) at least twice a day. An electric toothbrush can be very well tolerated, especially if the child enjoys vibrations. The parent should always help brush a child’s teeth after the child has attempted to brush them. When small, the child should be gently held to brush the teeth.
A Collis Curve toothbrush can be helpful since it brushes all sides of the teeth at once (can be purchased online). Toothpaste with fluoride is always recommended.
Do I need to floss?
Flossing should be done whenever possible using floss picks.
How often should the child be seen by the dentist?
Dental cleaning should be done twice a year, and when older, three times a year to prevent periodontal disease if able to be managed in the office. If the child or adult is not cooperative, cleanings may need to be done in the hospital under sedation every 3-5 years. It has been tolerated by some children with CdLS.
There has to be cooperation to be able to hold still, not only for x-rays and impressions, but also for regular visits and adjustments. Those that have had braces have generally had good results. It should be remembered that this is an optional treatment. Finally, accidents involving the teeth should be evaluated in the context of the harm to the child.
A phone call to the child’s dentist can help guide management.
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