The CdLS Blog
The Importance of Recreation and Leisure Activities
By: Family Services It can be challenging to find opportunities for teenagers to socialize with others, establish healthy relationships, and develop the self-confidence to know they are valued friends and partners. School can structure a child's day and opportunities...
Activities for end of summer fun!
By: Family Services A great way to try and prevent the summer slide is by getting kids out into the community and looking for ways to embed learning in everyday routines. This type of enrichment doesn't have to be expensive or require travel. Below are some ideas that...
Summer Safety
Family Service Team With its warmth and sunshine enticing us to be outside, summer temperatures and activities can pose some safety hazards. Here are some tips for keeping kids safe. Keep Hydrated and Cool Many children with special needs can be more susceptible...
Meet Bella
By: Ginny, Bella's Mom Bella is an outdoor-loving, curious 10-year-old who stands 41 inches tall and weighs 29 pounds. She has an oversized personality in a tiny package. She is goofy and has recently found her need for independence. Using a "nubby" on her left arm...
Fun Run a Success for Team CdLS Athletes
On July 24, $1,500 was raised for Team CdLS - athletes running the 2024 Bank of America Chicago Marathon in October for the Cornelia de Lange Syndrome (CdLS) Foundation. CdLS is a rare genetic spectrum disorder that causes a broad range of physical, cognitive, and...
Dad’s 15th year fundraising for son with CdLS a success
Mike F. raised nearly $50,000 for the CdLS Foundation earlier this month during his annual backyard obstacle course. The event was Mike's 15th year of fundraising in honor of his son Connor, who was born with the genetic disorder Cornelia de Lange Syndrome, or CdLS....
Meet Zach!
By: Nick and Cindy G. Meet Zachary! He is three years old and was born with a rare syndrome called Cornelia de Lange Syndrome. Zach is an incredibly resilient kid. He consistently deals with some discomfort daily. He struggles with hearing and is non-verbal,...
Meet Wilson!
By: Amelia S. Hi, I’m Amelia. This is my husband, Brandon, and our son Wilson. Wilson was born in November of 2020. If being pregnant during a global pandemic wasn’t stressful enough, at 28 weeks, we discovered Wilson was growing at a slower rate and had a heart...
2024 Team CdLS Baltimore Social Team
You can join the Team CdLS Baltimore Social Team! To receive an added discount on registration, join the CdLS Social Team. Regardless of when your teammates register, the entire group will get a $10 refund/discount once your team reaches 10 or more members. The...
The Red Horse Inn and the Tea Room at Gambrill State Park
By Linda Hasecke On our way back to Indiana from visiting our family in Arlington, VA we decided to try to find the Red Horse Inn in Frederick, MD, and the Tea Room at Gambrill State Park. Why? Because they were the sites of the first national gatherings of CdLS...
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