by Gabbie Nadeau | Oct 17, 2018
Regarding 10-month-old male with CdLS. He had a Nissen performed at nine months of age but pediatric surgeon is concerned with lack of weight gain. Recommending placement of g-tube for night feedings. Mom is hesitant. Encouraged mom to seek a consultation with her...
by Whitney Rinaldi | Oct 18, 2018
At my child’s annual eye exam, her doctor found what he thought was a cut that healed as a scar on her right cornea. Her cornea is cloudy. Could this actually be a cataract instead? 1. Cloudiness of the cornea (clear dome shaped covering over the eye) can look very...
by Deirdre Summa | Oct 18, 2018
Is hypertension common in newborns with CdLS? This case seems a little different since it is neonatal. Most of the time, hypertension in newborns is secondary to some systemic problem. The most common causes of neonatal hypertension are renal artery thrombosis (blood...
by Whitney Rinaldi | Oct 18, 2018
What would be a sufficient daily caloric intake for a CdLS child? We have had several nutritionists express their concern regarding our son’s daily caloric intake (approx. 400 calories per day). They have suggested a feeding tube to increase his daily caloric...
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