By Kathryn Wagner, mom to Molly
There isn’t a day that goes by that I don’t think of my daughter Molly.
She is everywhere around us. We still live in the house where she lived for most of her life. I can still hear her stomping around. I see the marks her wheelchair left on the moldings as we barely squeezed it through doorways. I can see her joyful expression as she splashed us until we were drenched at bath time. I feel the warmth in front of our fireplace and remember how much she loved to sit and watch it, sitting in our lap until our legs grew numb. I walk on our porch and sit in her glider bench and I can feel her beside me. I visit her grave with fresh flowers on a beautiful Maine day.
I don’t need a special day to remember Molly.
To me, Remembrance Day is for others to be reminded that our loved ones were here.
It is a reminder that we grieve our loss no matter how long ago our person died. It is a reminder to recognize that we are still members of the CdLS Foundation community with much to contribute.
Most importantly, It is a reminder to keep looking for ways to improve the lives of individuals with CdLS and their families in whatever way we can.
We encourage all family and friends to change their profile pictures to honor the individuals with CdLS we miss. Download the profile picture here: bit.ly/CdLSremembrance25
The CdLS Foundation and CdLS World Federation will host a live celebration of loved ones no longer with us on February 12, 2025, at 11:00 a.m. EST on Zoom. We invite all members of the CdLS community to join us for International CdLS Remembrance Day.
This important day is when the CdLS community surrounds families who have lost a child with CdLS. And offer love and support.
We ask everyone to light a candle to remember individuals with CdLS who have passed away over the years. During our live vigil, special guest and Chairman of the CdLS Foundation UK & Ireland, David Axtell, will offer encouragement.
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