The CdLS Blog

A Spooky Tale, A Board Game, and a Wake Up Call

A Spooky Tale, A Board Game, and a Wake Up Call

Effie Parks CTNNB1 🧬 Host of Once Upon A Gene Podcast 👨‍👩‍👧‍👦 Empowering families navigating rare diseases We went to Suncadia last weekend, it’s just over the mountain pass and our kids’ favorite place. It’s where Casey and I got married so it has magic for us too....

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Life after School Ends

Life after School Ends

PSN Team Once kids begin school, the years after kindergarten seem to pass so swiftly that before we know it, we’re sitting at graduation. Then what? If you are not planning on higher education, it’s time to start planning for employment options. Thankfully, most...

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CARE COORDINATION AND PERSONAL CARE

CARE COORDINATION AND PERSONAL CARE

By Antonie D. Kline, M.D., CdLS Foundation Medical Director There are known factors about being a parent. Parents respond naturally to their infant’s cries and work to provide nourishment, clean diapers, clothes, and shelter. As children age, they are brought to the...

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Help Make Halloween Fun for ALL Kids!

Help Make Halloween Fun for ALL Kids!

By Chantai Snellgrove ParentingSpecialNeeds.org “Not every child can eat…. But, every child can Trick-or-Treat” Kids love candy. However, for many kids candy is simply not an option. Between childhood obesity, juvenile diabetes, food allergies, feeding tubes, and...

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