The CdLS Blog
Meet Mikayla
By Mikayla's Family Mikayla was a Special Olympics gold medal winner in 8th grade at the Illinois State Games. She loves music from classical to country and everything in between. Her favorite food is sushi. You will always find her wearing red nail polish. She LOVES...
You Asked, We Answered: What communication devices should we consider?
By CdLS Foundation Clinical Advisory Board (CAB) Speech (and communication device) What should the speech therapist be doing to help my 2 ½-year-old daughter start talking? My daughter has been seeing a speech therapist since birth. We would like to know if the...
You Asked, We Answered: What should we do about sleep issues?
By CdLS Foundation Clinical Advisory Board (CAB) Sleep Difficulties Mother reports irregular sleep patterns and states that son only has restful sleep when he has taken his Tegretol (it knocks him out). What are your thoughts of cause or suggestions of treatment? If...
You Asked, We Answered: Dealing with Teen Mood Swings
By CdLS Foundation Clinical Advisory Board (CAB) Mood Swings My teenage daughter is very high functioning; however, the older she gets, the more rigid and unwilling to accept changes in daily routines she becomes. She will cry uncontrollably, or become reclusive until...
Navigating Communication Issues
By CdLS Foundation Clinical Advisory Board (CAB) Nonverbal Communication In a 9 year old male, squealing and grunting are the only vocal sounds. Should this be discouraged? We’d appreciate any guidance on teaching him to communicate “yes/no.” Are squealing and...
The Parts, Pieces, And Timeline of Transitioning Into Adulthood
Posted By Claudia Axelrod, Dr. Shane T. Spiker, And Holly Downs parentingspecialneeds.org Adulthood is a challenge for anybody. Each of us moves toward a level of independence we didn’t previously have and is expected to be more responsible than at any other time in...
Meet Our Volunteers
We're Anabel and Joey, parents of Ophelia Perez, a strong-willed, always happy, and playful little girl. Naturally, when asked to become Regional Coordinators in Florida, we jumped at the opportunity. Ophelia "Ophe" was diagnosed with CdLS at age 4; before her CdLS...
Meet Izaak
By Izaak's family Izaak is small, mighty, and thinks he’s our boss. He embodies a colossal presence, captivating those around him with his indomitable spirit and unyielding determination. Despite his small size, he commands attention, not through volume or...
Malls Nationwide To Host Sensory-Friendly Santa
By Shaun Heasley DisabilityScoop.com As the holiday season kicks off, kids with autism and other disabilities will have a chance to visit with Santa Claus without all of the usual chaos during a series of special events across the country. So-called Santa Cares events...
6 TIPS TO HELP YOU COPE WITH HOLIDAYS AND SPECIAL DAYS
By Courageous Parents Network courageousparentsnetwork.org/ Practice simple traditions that are easy to execute and feel meaningful. There is no one way or right way to celebrate. Set perfection aside and decide what is important to you. It’s okay to say no to old...
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