The CdLS Blog

Peter Condon is 30 years old and lives in Spokane, WA. He was diagnosed with Cornelia de Lange Syndrome (CdLS) at the age of two. Many thought he would not speak more than a few words or be able to function in groups. Support and information from the CdLS Foundation...

By CdLS Foundation Clinical Advisory Board (CAB) We have been trying to toilet train our five year old, but have had little success. Can you help us understand what factors are involved in this process and when we might expect to see some gains? Toilet training is a...

By Lexi Walters Wright Understood.org Trips can be stressful for kids who learn and think differently. These tips can help your child prepare. Kids can be creatures of habit. And this is especially true for kids who learn and think differently. They often like keeping...

By the CdLS Community Can you share the moment you first learned about your child’s CdLS diagnosis? How did you feel, and what helped you through that time? Gabriella Watts - When I found out Kalani's diagnosis, I was actually relieved. For a year, I knew something...

By The Understood Team Understood.org Did you know that most smartphones and digital tablets have built-in assistive technology (AT) that can help with learning and thinking differences? The range of AT features varies depending on the device’s operating system. But...

By Shaun Heasley disabilityscoop.com Closed captioning for television and movies has remained largely unchanged for decades, but a new design aims to give people with disabilities a better idea of what’s happening on screen. Known as “Caption with Intention,” the...

by Shaun Heasle www.disabilityscoop.com Amid rising concern about drowning among children with autism, a new effort is underway to help kids with cognitive, physical and developmental needs across the country learn to be safe in the water. Goldfish Swim School, which...

Originally published on Patch.com By Ellyn Santiago, Patch Staff NORTH BRANFORD, CT — The North Branford Town Council was joined on Tuesday by North Branford’s Ashley Fernandez, regional coordinator for the CdLS Foundation, her husband Michael, daughter Lilly, and her...

By Carson's Family Carson is almost 3 years old! He is an absolute joy in our lives & always the most smiley boy. We found out about Carson’s limb difference about halfway through the pregnancy. No doctor or test could pinpoint why it had occurred. We were induced...

By Amanda Morin Understood.org What does it mean when your child is angry? Are they frustrated? Or anxious? Learn how understanding what’s behind your child’s anger can help you respond in the best way possible. Most kids get angry sometimes. It’s a natural reaction...