The CdLS Blog

Dad Stories
How has being a dad to a child with CdLS shaped who you are today? Raekwon Graham - Being a dad to a child with CdLS shaped me who I am today in so many ways. Becoming a dad changes your life but becoming a dad to a child with CdLS reshapes my heart, my mindset, and...

How to Create a Sensory-Friendly Home: Practical Tips for Every Room
parentingspecialneeds.mydigitalpublication.com Creating a sensory-friendly home can ease stress, reduce overwhelm, and promote calm for autistic children. This guide shares four core principles, with room-by-room suggestions, to help you make practical changes that...

Vacation at home with fun activities: Driving here, Diving there
parentingspecialneeds.mydigitalpublication.com When you can’t get away, a “road trip” through your house can turn any day into a beach day. Learn how with this fun activity. TURN YOUR HOME INTO A FUN ROAD TRIP TO THE BEACH My family and I love going on road trips,...

Local ice cream social raises funds and awareness for Team CdLS
By Ashley Kus It was an excellent night for ice cream in early June when the National Honor Society of Simsbury High School in Connecticut hosted a fundraiser at Ben & Jerry's. The event raised $225 for Team CdLS. Special thank you to the staff at Ben &...

Daughter’s Triumphs, Challenges Inspire Farm Program For Adults With IDD
by Jennifer Eberbach, MLive.com/TNS DisabilityScoop.com NORVELL TWP., Mich. — Jessie Behen attentively filled an apple seed pot, running her fingers through a container to find the best pinches of dirt while sitting inside a skills center at Imagine Center Farm. She...

11 tips for working with your ex to parent your child
Lexi Walters Wright understood.org It’s not always easy for the most well-meaning and intact sets of parents to get on the same page when raising a child who learns and thinks differently. But when parents are divorced or separated, there can be even more obstacles...

School Field Day Goes Sensory Friendly
Disabilityscoop.com by Elena Perry, The Spokesman-Review/TNS SPOKANE, Wash. — Students in special education programs may abstain from the traditional high school fare; the buzzers and screaming at a basketball game or flashing lights at a school dance could be...

5 Life Lessons I Learned During My Daughter’s Therapy Sessions
By Ali Cummins TheMighty.com My daughter began physical therapy when she was only 4 months old and started occupational therapy not long after. At the time, her hypotonia made it impossible for her to even lift her head. I spent my days watching the therapists try to...

Meet Carter
The OBGYN was concerned at 28 weeks when mom was pregnant with Carter. Carter was small for his gestational age in the womb. Carter was born at 34 weeks 5 days via emergency c-section and was whisked away to the NICU. The doctors and nurses tested the placenta to see...

CdLS awareness day honors patients for sixth year
Originally By LUZJENNIFER MARTINEZ Valley Breeze Deputy Editor CENTRAL FALLS – For the sixth year in a row, Central Falls resident Sara Lopes Tavares held a Cornelia de Langue syndrome (CDLS) awareness day, in honor of her younger sister Samira, who was born with the...
Recent Comments