The CdLS Blog

By Carson's Family Carson is almost 3 years old! He is an absolute joy in our lives & always the most smiley boy. We found out about Carson’s limb difference about halfway through the pregnancy. No doctor or test could pinpoint why it had occurred. We were induced...

By Amanda Morin Understood.org What does it mean when your child is angry? Are they frustrated? Or anxious? Learn how understanding what’s behind your child’s anger can help you respond in the best way possible. Most kids get angry sometimes. It’s a natural reaction...

By Farrah, Halston's sibling This is my little brother Halston. He has changed my life in countless ways. Having a sibling with special needs is such an eye-opener. It teaches you about patience, love, and kindness. It is definitely a challenge and something you can...

By Honest's Family Meet Honest! Honest loves fruit snacks, crackers, and her stuffed animals. She enjoys singing along to her favorite songs, like twinkle twinkle little star, and she loves to jump on the trampoline. When I was pregnant with Honest, she was small, but...

By Rachael's Family This is Rachael, she will be turning thirty-two in May. She has overcome so many obstacles but lives everyday to the fullest. Her older sister, who is an RN and has worked in the Emergency Room for many years, asked if she could take over the care...

By Kathleen's Family Meet Kathleen — our sweet and spirited four-year-old! She’s a very special girl with an HDAC8 variant, and every day she amazes us with her strength and joy. Kathleen loves going to school, especially her wonderful program for children who are...

by Shaun Heasley DisabilityScoop.com A major home furnishings retailer is introducing a new line of products designed to make life easier for people with disabilities. Ikea said this month that it is rolling out a collection of accessible items for the home. The line...

By CdLS Foundation Clinical Advisory Board (CAB) Can you please respond to these concerns and the course that the treatment and evaluation should take? Is it unusual for seizures to develop at this age? Do most children with CdLS manifest them earlier in life? Our son...

By Natalie, Kalani's sibling What do you feel is the coolest thing about your sister/brother? Kalanis is such a special little guy. He’s small and super cute, and he always does his own thing without worrying about what anyone else thinks. He’s really good at knowing...

By Julie Rawe Understood.org At a glance Many districts are trying to make summer school more fun and engaging. Some kids may be eligible for special education services during the summer. Summer learning options can range from free programs at public schools or...