By: Garth and Molly Black, parents to G. Alexander Black, Pennsylvania, USA
People rush to get rid of grief because they see it as hanging onto loss. But grief is really hanging onto love—which is why you always feel it. – Riri
CdLS Remembrance Day 2025 is NOT a day to state that our son died but rather to shout that Alex LIVED. We remember him for all he was and remains, including enduring memories of struggle yet overcoming and immense love. He changed us to the core of our beliefs in what is good and kind.
The journey would have been vastly different had we not had the resources the CdLS Foundation provided us, especially the linkage to other families. The Foundation still provides this connection today by offering continued opportunities to participate in its mission. Once you are a member of the CdLS Family, you are always a member of the CdLS Family.
We thank the CdLS Foundation for recognizing and elevating the needs of grieving families through this annual event. You will find grief resources at https://www.cdlsusa.org/grief/
You may honor your deceased child by sharing your experiences and loving the living children and families that can benefit from knowing you and your child. https://www.cdlsusa.org/in-memoriam/
We encourage all family and friends to change their profile pictures to honor the individuals with CdLS we miss. Download the profile picture here: bit.ly/CdLSremembrance25
The CdLS Foundation and CdLS World Federation will host a live celebration of loved ones no longer with us on February 12, 2025, at 11:00 a.m. EST on Zoom. We invite all members of the CdLS community to join us for International CdLS Remembrance Day.
This important day is when the CdLS community surrounds families who have lost a child with CdLS. And offer love and support.
We ask everyone to light a candle to remember individuals with CdLS who have passed away over the years. During our live vigil, special guest and Chairman of the CdLS Foundation UK & Ireland, David Axtell, will offer encouragement.
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