by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...
by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
by Gabbie Nadeau | Jan 7, 2021 | Uncategorized
Update as of November 2021, We now have COVID immunization for 5-12 year olds. This is a lower dose, because their immune system is so much better and quicker than those of teens and adults. We strongly encourage all children with CdLS at those ages to receive the...
by Gabbie Nadeau | Oct 6, 2020 | Uncategorized
Norm Winnerman, valued member of the CdLS Foundation will be receiving the Rare Impact Award from NORD. NORD will be honoring all exceptional awardees, virtually, on October 9, 2020 at 7:00 pm EST. The award honors his years of service as a pioneer, mentor and...
by Gabbie Nadeau | Apr 20, 2020 | Uncategorized
Minneapolis, MN based Upstream Arts is inviting the CdLS community into the virtual world for weekly Live Streaming Zoom classes. As parents of a 28 year old child with CdLS who inspired Upstream Arts’ work and mission, we hope we can bring some play and joy...
by Gabbie Nadeau | Apr 7, 2020 | Uncategorized
Scholastic’s Learn at Home provides free active learning resources to help reinforce and sustain educational opportunities for students who are unable to attend school. You can keep the learning going with these special cross-curricular journeys. Every day...
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