by Gabbie Nadeau | Oct 4, 2019 | Uncategorized
Marckis Mountz is the youngest of seven children, all raised by loving parents Jana and Ken. Marckis grew in his mom’s heart and not her belly. Marckis was born at 37 weeks weighing 2 pound 2 ounces and only 14 inches long. Being so small Marckis had to overcome many...
by Gabbie Nadeau | Oct 1, 2019 | Uncategorized
Wonderland Camp has a sign stating, Serving Special needs since 1969. The event was hosted by the Rauba family, whose daughter Janelle (11) has CdLS. Janelle’s dad, who loves to barbecue, served hamburgers and hot dogs for lunch. Other family members, including,...
by Gabbie Nadeau | Sep 18, 2019 | Uncategorized
I was 21 weeks pregnant. “Hi, Molly. This is Dr. F. calling about your blood work.” My heart started racing. I knew the doctor wouldn’t call unless he was concerned. I ran to the bathroom of the restaurant we were in – the only place I could think to go. My...
by Gabbie Nadeau | Sep 6, 2019 | Media Room, Uncategorized
By Sean Teehan The Avon-based Cornelia de Lange Syndrome (CdLS) Foundation has moved its headquarters to a larger office in town to facilitate growth, it said. The CdLS Foundation has 10 employees and provides services — including running support groups and four...
by Gabbie Nadeau | Sep 4, 2019 | Media Room, Uncategorized
Dear Ms. Spigarolo, Mr. Kraft and the New England Patriots Team: I want to extend a sincere thank you, on behalf of all families with children with special needs, for providing access to enjoy your training camp. This year was even more important and special for our...
by Gabbie Nadeau | Aug 7, 2019 | Uncategorized
TO MY AMERICAN FRIENDS: I had the pleasure of representing us at the CdLS International Conference last weekend in Europe. It was a bittersweet experience to say goodbye to our friends around the world who are part of our CdLS Family. It was thrilling to see families...
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