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Sensory-Friendly Santa Coming To Hundreds Of Locations Nationwide

Sensory-Friendly Santa Coming To Hundreds Of Locations Nationwide

by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized

by Shaun Heasley | www.disabilityscoop.com As the holiday season gets underway, hundreds of malls will offer individuals with disabilities a special opportunity to meet with Santa Claus without the hubbub that such visits often entail. Roughly 500 shopping centers...

Cornelia de Lange Syndrome Foundation Supports Rare Disease Day® and Joins Global Movement to Raise Awareness for Rare Diseases

by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized

The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...

Five Outstanding Professionals from Across the US Elected to Prestigious CdLS Foundation Board of Directors

by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized

The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
The CdLS Foundation Longtime Volunteer Receives Rare Impact Award from NORD!

The CdLS Foundation Longtime Volunteer Receives Rare Impact Award from NORD!

by Gabbie Nadeau | Feb 24, 2020 | Media Room, Uncategorized

Norm Winnerman, retired Danbury High School teacher and Athletic Director, and valued member of the Cornelia de Lange Syndrome (CdLS) Foundation will be receiving the Rare Impact Award. The National Organization for Rare Disorders (NORD) will be honoring all...
Avon nonprofit moves to larger office space in town

Avon nonprofit moves to larger office space in town

by Gabbie Nadeau | Sep 6, 2019 | Media Room, Uncategorized

By Sean Teehan The Avon-based Cornelia de Lange Syndrome (CdLS) Foundation has moved its headquarters to a larger office in town to facilitate growth, it said. The CdLS Foundation has 10 employees and provides services — including running support groups and four...

An Open Letter to the New England Patriots

by Gabbie Nadeau | Sep 4, 2019 | Media Room, Uncategorized

Dear Ms. Spigarolo, Mr. Kraft and the New England Patriots Team: I want to extend a sincere thank you, on behalf of all families with children with special needs, for providing access to enjoy your training camp. This year was even more important and special for our...

Minute Man Arc client graduates from self-advocacy program

by Gabbie Nadeau | Dec 27, 2018 | Media Room, Uncategorized

The following is from a submission by Stephanie Parish, Minute Man Arc. Valerie Lessa, of Concord, graduated from an eight-week Self-Advocacy Leadership Series at Bridgewater State University on Sept. 5. [Courtesy Photo] On Sept. 5, Valerie Lessa, a Minute Man Arc...

Parents host One Love, One Heart 5K to benefit rare disorder, daughter on Dec. 8

by Gabbie Nadeau | Dec 3, 2018 | Media Room

Jim and Jen Pomfret are preparing to mark the fourteenth year of the One Love, One Heart 5K Walk/Run on Saturday, Dec. 8, at 10 a.m. The event supports those who have a rare genetic disorder called Cornelia de Lange Syndrome (CdLS), including their daughter, Maya....

Local Restaurant Raises Funds to Assist Woman Bringing Awareness to Rare Disease

by Gabbie Nadeau | Nov 14, 2018 | Media Room

Throughout the month of October, Cornerstone Artisanal Pizza & Craft Beer (110 Brewery Lane, Portsmouth, NH) will be joining forces with Tabitha McElroy to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. The menu will have a...

9th Annual Brew & BBQ Benefiting the Cornelia de Lange Syndrome (CdLS) Foundation, Nonprofit Working with Individuals with Rare Disorder

by Gabbie Nadeau | Nov 14, 2018 | Media Room

On Saturday, November 10th from 5:00 – 8:30pm, at Currahee Brewing Co. in Alpharetta, GA the 9th Annual Brew & BBQ to benefit the CdLS Foundation will be held. Last year, the event raised a net of $9,000, the highest total to date. Over the last eight years the...
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